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Nov 14

2022 U16 Cancer Patient Experience Survey results published

By Announcements, Personalised Care, Treatment and Pathways

The 2022 under-16 Cancer Patient Experience Survey (U16 CPES) results have been published. Click here to view the results.

The annual national survey, now in its third year, measures children’s cancer and tumour care provided by the NHS in England.

The survey was developed to better understand children and young people’s experience of cancer, which is one of the commitments of the NHS Long Term Plan.

The 2022 survey was completed by 885 patients and parents or carers across England – a response rate of 25%. A response consists of one survey completion for a single patient, which could consist of both parent and child responses.

Children from Humber and North Yorkshire usually receive cancer care at Leeds Teaching Hospitals NHS Foundation Trust or Sheffield Children’s NHS Foundation Trust.

Some of the national findings from the report include:

  • 75% of children aged 8-15 reported that they were looked after very well for their cancer or tumour by healthcare staff, compared to 77% in 2021.
  • 89% of parents/carers rated the overall experience of their child’s care as 8 or more (out of 10), compared to 89% in 2021.
  • Parents/carers gave a mean rating of 8.99 for the overall experience of their child’s care, compared to 9.01 in 2021.
  • Parents/carers of children who were in remission or long term follow up reported a higher score (9.17) than parents/carers of children who were recently diagnosed (8.33), in watch and wait (8.69) and currently receiving treatment (8.89).
  • Overall experience scores varied from 8.86 for parents/carers of children living in the least deprived areas in England compared to 9.08 for the parents/carers of children living in the second and third indices of multiple deprivation (IMD) quintiles, 9.03 for parents/carers of children living in the most deprived areas of England, and 9.40 for parents/carers of children living outside of England.

The survey’s respondents are children who were aged between eight and 15 at the point of discharge, and parents or carers of children aged up to 15.

The publication of the under-16 results comes four months after the adult CPES results were published in July.

Jul 20

Cancer Alliance welcomes 2022 Cancer Patient Experience Survey results

By Announcements, Personalised Care

Humber and North Yorkshire Cancer Alliance welcomes the publication of the 2022 Cancer Patient Experience Survey (CPES) results.

Now in its 14th year, the CPES results help organisations that commission and provide cancer services to understand what aspects of cancer services are working well and identify areas for improvement.

The NHS survey asks questions such as how and when the cancer was diagnosed, how involved patients felt in decisions about their care and treatment and how much information and support they were given.

The 2022 CPES survey was completed by 1,994 patients in Humber and North Yorkshire, equating to a response rate of 57%. Nationally, the survey was completed by 61,268 people (53% response rate).

The Humber and North Yorkshire Cancer Alliance-area CPES results can be viewed here.

The areas for improvement identified in the 2022 survey across the Humber and North Yorkshire area include:

  • Ensuring patients have a main point of contact within care teams
  • Explaining a cancer diagnosis in a way that patients can completely understand

CPES results are available at trust, Integrated Care System, Cancer Alliance and national level. They can be viewed here.

Lucy Turner, Managing Director, Humber and North Yorkshire Cancer Alliance, said: “Humber and North Yorkshire Cancer Alliance welcomes the results of the 2022 national Cancer Patient Experience Survey. There are some encouraging results for our region and also results which identify areas of cancer care which we can improve upon.

“Once the results have been analysed, we will work with our Cancer Alliance partner organisations, including hospital trusts which provide cancer services in our region, to co-develop and implement improvement plans based on the results of this year’s survey.”

Find out more about the survey by visiting the CPES website.

May 26

Tracy’s call to others to protect themselves in the sun after her skin cancer diagnosis

By Awareness and Early Diagnosis, Personalised Care

Tracy, 50, from Beverley, East Yorkshire, was a regular sunbed user and never really took sun safety seriously until she developed skin cancer six years ago. Tracy is now sharing her story to help raise awareness of the importance of protecting your skin from UV rays.

Tracy said: “Looking back, I never thought of the risks involved of sitting in the sun or using a sunbed. I always thought of a tan as looking healthy but now I know, there’s no such thing as a healthy tan, a tan in fact shows that there’s been damage to your skin cells from UV rays, so it is far from healthy.”

Tracy had always been aware of a mole on her arm and had previously asked her GP to look at it. At the time the GP had no concerns. Towards the end of 2016, Tracy noticed that the mole had grown and had lost its colour in the middle. It had irregular borders, was around 1cm wide and was dry.

Tracy said: “I told a colleague at work, who insisted that I got it checked, so I made an appointment with my GP at the start of February 2017. The GP used a Dermatoscope to take a closer look at the mole. She said she would refer me for further investigations, ‘just in case’, little did I know how serious things were to become.”

Tracy saw a consultant approximately two weeks later and was told that her mole needed removing immediately. She was scheduled for surgery on 26th February 2017.

Tracy said: “The next few weeks went by and as time went on, I thought everything must be okay. However, on 9th May 2017 I was delivered the devastating news from a Skin Cancer Nurse Specialist, that I had malignant melanoma skin cancer. I was petrified as my friend’s brother had died following a skin cancer diagnosis.

“However, the nurse was excellent, she gave me lots of information and was available for any questions I had. I was also offered counselling at the Queens Centre at Castle Hill Hospital in Cottingham.”

Tracy needed to have the surrounding margins from where the mole had been, removed. She recalled: “I was due to fly to Florida that week, I considered cancelling, but had a very excited nine-year-old at home and my consultant told me to go and enjoy the holiday.”

Tracy was booked in for surgery the day after she returned from America. The wide local incision meant she had to have the biopsy scar and surrounding tissue removed. Tracy explained: “The surgery was done under a local anaesthetic, and I had a six-inch scar on the top of my arm, but it was worth it to know that the cancer was potentially gone.”

Five weeks later, Tracy received a call to say that everything was clear. She continued to be seen for another year for observations. During this time a biopsy was taken on another mole, which was benign.

In 2019 Tracy was discharged from NHS care, but now sees a dermatologist privately, and has had six more moles removed.

Tracy said: “I now wear factor 50 sunscreen all year, and although I do still holiday abroad, I stay out of the sun in the shade, and cover up. To be honest I prefer sitting in the cool with a cocktail!

“If I could give advice to anyone, it would be that there is no such thing as a healthy tan. Protect yourself with clothing and a high SPF, do not sunbathe and never use sunbeds. It really is not worth it.”

Find out more about skin cancer, sun safety and the steps you can take to protect yourself on the Skcin cancer charity website.

Tracy now enjoys the sun safely

Apr 21

Under 16 Cancer Patient Experience Survey

By Personalised Care

A diagnosis of childhood cancer understandably has a devastating impact on the emotional health and wellbeing of the child and their family, both during and after treatment. Children and young people’s treatment and experience of cancer differs greatly from adults, and we recognise the need for a personalised approach to their cancer care.

It’s so important for the NHS to listen and learn from children and young people in order to provide them with the best possible care and experience throughout treatment and to reduce the impact it has on them later in life.

We want to hear from children and young people, and their families, about their experiences so that we can continue to improve the care and services the NHS delivers.

The Under 16 Cancer Patient Experience Survey builds on the work of the National Cancer Patient Experience Survey, understanding that cancer care pathways and care priorities for children and young people often differ to adults.

The survey has been running since 2020 and the results provide national-level insight into the experiences of children with cancer and informs how the NHS delivers cancer services going forward. Commissioners, providers and national policymakers use the results to assess performance both locally and nationally, to help identify priority areas for enhancing children’s cancer services. The aim is to radically improve the outcomes for children and young people affected by cancer.

The third wave of the survey is being implemented across England from April 2023. Children under 16 who received NHS cancer care during 2022 and their parents or carers will be invited to participate. They will be able to complete a paper questionnaire or an online version of the survey on any device.

Experience of care for people who use our services is extremely important, and the need for personalised care and treatment is well recognised. By contributing to the survey, young people and their parents or carers will help the NHS to continue to improve its services and better support children and young people receiving personalised care.

For more information on the survey visit www.under16cancerexperiencesurvey.co.uk

Nov 02

Under 16 Cancer Patient Experience Survey 2021 results published

By Personalised Care

The 2021 results of the Under 16 Cancer Patient Experience Survey (U16 CPES) have been published.

The U16 CPES measures experiences of tumour and cancer care for children across England. The survey is now in its second year.

The survey’s respondents are children who were aged between eight and 15 at the point of discharge, and parents or carers of children aged up to 15.

Children from the Humber and North Yorkshire area tend to receive cancer care at Leeds Teaching Hospitals NHS Foundation Trust or Sheffield Children’s NHS Foundation Trust.

From a national perspective, some of the findings were:

  • 9.01 out of 10 was the average parent/carer rating of the overall experience of their child’s care
  • 89% of parents/carers rated the overall experience of their child’s care as 8 or more out of 10.
  • 95% of children report being looked after very well or quite well, with less than 1% saying they were not looked after well.

You can view the results by visiting Under 16 Cancer Patient Experience Survey website.

Jul 22
Cancer patient experience survey wording - help us improve cancer care for everyone with two speech bubble boxes

Cancer Patient Experience Survey results published

By Personalised Care

The 2021 Cancer Patient Experience Survey (CPES) results have been published.

What is the Cancer Patient Experience Survey

The survey has been carried out annually since 2010. It helps organisations that commission and provide cancer services to understand what aspects of cancer services are working well and identify areas for improvement.

The survey was refreshed in 2021 in response to feedback from patients, providers and commissioners of cancer services. It therefore should not be compared with results from previous years.

Regional response

The 2021 CPES survey was completed by 59,352 patients nationally. Equating to a response rate of 55%. In Humber and North Yorkshire 2,433 patients completed the survey. Resulting in a response rate of 60%.

How we use the results

As in previous years, the Humber and North Yorkshire Cancer Alliance will use the 2021 CPES results to identify local priorities and work with patients and partners to deliver positive change.

Areas for improvement

The areas for improvement identified in the 2021 survey across the Humber and North Yorkshire area include:

  • waiting times for diagnostic test results
  • patients having a main point of contact in their care team
  • staff providing patients with information on available support
  • cancer research opportunities being discussed with the patient.

Click here to view the Humber and North Yorkshire Cancer Alliance-area CPES results.

May 25
Image of two people sat on an outdoor bench looking at each other.

Latest Cancer Quality of Life survey results published

By Involvement Opportunities, Personalised Care

The latest set of results for the Cancer Quality of Life Survey have been released.

The survey aims to find out how quality of life may have changed for people diagnosed with cancer, helping to identify where care is working well or not so well, and whether any new services are required to improve quality of life.

The inaugural Quality of Life survey results were released in September 2021 and are updated every six months, with the latest set of results released in late April 2022.

When the survey was first launched only people who had received a breast, prostate or colorectal cancer diagnosis were asked to complete the survey around 18 months after diagnosis.

Although since July 2021 the survey has been extended to capture the views of all cancer patients 18 months post-diagnosis, the results are still restricted to breast, prostate or colorectal cancer patients while results for other cancers are collated in numbers worth analysing.

The results show that quality of life for people affected by cancer in Humber and North Yorkshire (80.7 out of 100) was slightly higher than for those with a cancer diagnosis living in the rest of England (80.4).

Image of two people sat on an outdoor bench looking at each other.

The average overall health score for cancer respondents in Humber and North Yorkshire was 75.2 (out of 100) – the same as the national average. Unsurprisingly this figure is significantly lower than the average score for non-cancer patients which is 81.8.

To date the survey has been sent to 3,282 people in Humber and North Yorkshire and 1,795 of these people have completed the survey. The Humber and North Yorkshire Cancer Alliance’s response rate of 54.7% is the fifth highest response rate of the 21 cancer alliances in England.

Find out more: https://www.cancerdata.nhs.uk/cancerqol

May 09
Photo of Helen and her brother at a RideLondon event. Helen is wearing a t-shirt and has short blond hair. She is wearing sunglasses. Her brother is wearing a cycling top and helmet.

Living with Ovarian Cancer: Helen’s story

By Personalised Care

Helen Heagren, from Grimsby, was diagnosed with ovarian cancer in 2016. Six years later, she is living with cancer and has shared her story in the hope that it will help others to become aware of the symptoms and know that support is available.

In 2015, Helen was living in Essex and worked as a Teaching Assistant. In the run up to her 50th birthday, she noticed her weight had ‘crept up’ and decided she was going to fit and drop a few dress sizes.

“Having set myself target of becoming a size 12, I joined a local gym and took part in dance and aerobic classes most days. After 10 months, I managed to reach my weight loss target however, I still had a little belly so I decided to keep going.

“One Saturday morning, whilst doing pelvic exercises, I felt something strange move and it played on my mind after the class, although I can’t really say why. I decided to contact my GP and an appointment was made for three weeks later.

A photo of Helen's stomach which she describes as looking pregnant at the time of the photo.

“Whilst waiting for my appointment, I noticed my belly had started to expand and it looked like I was pregnant. Although pregnancy tests were saying I wasn’t, a concerned colleague who had also noticed that my belly was expanding quickly, advised me to see a GP urgently.

“I walked into the GP Surgery on 24th November 2015.  My GP examined me and thought I had Ovarian cysts. She arranged for me to have an ultrasound for the following morning at my local hospital.

“The next few weeks flew by with appointments, scans and a biopsy. Nine litres of fluid were removed but it quickly built up again and I was taken into hospital on New Year’s Eve in 2015 to have another eight litres drained. They then fitted a permanent drainage bag and at this point the word cancer had not been mentioned at all.

“In early January 2016, when all my results were back, myself and my husband were called to have a meeting with an Oncologist. There was also a nurse in the room who introduced herself as Tina. It was then I was told I’d been diagnosed with Stage 4 ovarian cancer. Wow. My emotions were all over the place. Cancer? Really? How? Why? Ovarian Cancer? Why don’t I know about this? What are and were the symptoms? I don’t feel ill. What is stage 4? Am I going to die? No one in my family has had cancer. Are they sure? So many questions.”

Helen’s Oncologist explained the options available, including information about trials. Helen accepted a clinical trial for a new drug call Avastin, which had shown good results in other cancers, and also started chemotherapy in February 2016.

“I have so many funny stories from the chemo room. I did try to be good but things just went wrong. For example, in my first session, I sat next to a lovely old man who was receiving treatment for throat cancer.

Picture of Helen in a hospital gown with no hair smiling and eating

“I needed the toilet, so I unplugged my chemo stand on wheels and off I went. People around me started shouting “stop”,” look!” and I was mortified to see I had unplugged the wrong stand and was bringing the elderly man with me! Gosh, he and his wife did laugh and all the nurses came running.

“After three chemotherapy sessions, I went to a hospital in London for a full hysterectomy. The surgeon who carried out the operation spotted that it had spread to my bowel and other areas, so I had a stoma fitted. In total my surgery was 9 hours. I still have the stoma bag today and know now that this can happen with ovarian cancer.

“After my surgery, when I was fit enough, I went back to chemo and Avastin. I was also offered a genetic test which proved to be positive for the BRCA 1 gene. The enabled my mum, siblings, and son to be tested to see if anyone else had the gene. That was the scariest time.”

Helen was advised by her Clinical Nurse Specialist to look up some Ovarian cancer online charity groups and after looking at a few websites, Helen decided Target Ovarian Cancer was best for her.

“Their website was what I was looking for. I could find information about research and trials, and there was a nurse on hand that you could phone. In lockdown, they did some fabulous zoom seminars with clinicians that covered so many topics on ovarian cancer. There was also an online chat group which was full of valuable information and helped me to meet some ladies locally that I now catch up with over coffee and cake.

“There were also things I could involve myself in to help raise awareness and, as a person who has ovaries but who didn’t know much about the disease before my diagnosis, that is what I chose to do.

“As part of one of Target Ovarian’s awareness campaigns, I was lucky enough and honoured to be invited to Westminster to speak in Parliament. I also joined in with Target Ovarian‘s annual awareness walk at the Olympic Park and had fabulous fun with some amazing people and families.

“My family and friends have also helped to raise awareness for the charity. My brother is a keen cyclist and managed to get a charity place for RideLondon, so he can proudly say he’s ridden the Olympic 2012 course twice now. My friend’s husband completed it too, which allowed him to tick off a bucket list challenge whilst raising much needed funds and awareness for the charity.”

A photo of Helen speaking at a Target Ovarian event.
Photo of Helen and her brother at a RideLondon event. Helen is wearing a t-shirt and has short blond hair. She is wearing sunglasses. Her brother is wearing a cycling top and helmet.
A photo of a Target Ovarian Cancer digital billboard which includes a picture of Helen. The billboard reads '11 women die every day from ovarian cancer. It's time to take ovar.

Helen is now in her sixth year of living with ovarian cancer and hopes to help people talk about their ovaries more freely.

“The thing with ovarian cancer is that it doesn’t care who you are. It was always thought of an ‘older ladies’ cancer but it really doesn’t care what age you are.

“If your ovaries work then you should know the symptoms: bloating, needing to wee more, difficulty eating a full meal, feeling full, persistent pelvic or abdominal pain. I also suffered with backache.

“I have been amazed by the lack of education on ovarian cancer, especially about cervical screening not detecting ovarian cysts of cancer. I think there is a lot of misinformation about this and it’s important to know that cervical screening does not detect ovarian cysts or cancer. It would be great if they included information about this, and the symptoms of ovarian cancer, when giving talks about puberty to people in older years at schools.

“I’m currently having my fourth cycle of chemotherapy. I’m incurable and on maintenance treatment, which is keeping the Cancer at bay. I also have regular scans which gives my peace of mind that I know what it’s up to.

New treatments and drugs are being developed and evolving all the time. Some will suit and some won’t, so we need to find the one that does. Walking and climbing the stairs affects me getting out of breath but I do everything in my own time.

I am getting on with my life, especially after Covid-19 put a halt to things I had wanted or planned to do. I’ve resumed going to the Theatre in the West End and enjoy watching touring bands and musicals in Hull and Grimsby. I now meet friends for brunch, and I’ve been on the back of my friend’s Harley Davidson, which I wanted to do.

Headshot photo of Helen and her husband. They are both looking at the camera and smiling.

I hate heights but was challenged to walk over the O2 with a friend. It took a while, and the guide put us at the back which was hilarious, but we did it.

I’ve also joined groups locally recommended by St Andrews Hospice and Macmillan and I’m really enjoying meeting the different characters. It’s not morbid as I thought and they are a positive bunch, like me. We chat about anything and have fun. We do have a moan too, but that’s life isn’t it.

So, I’m still living my life. I just carry extra baggage. My message to anyone with ovaries is this:

  • Know the symptoms and look out for each other. You are not alone.
  • Know your bodies and see your GP at the earliest opportunity if you think something isn’t right. I am only here because I followed my instinct.
  • GPs have had extra training on Ovarian Cancer and spotting signs and symptoms, but if you are not happy with their explanation or diagnosis, don’t give up! Keep going back and be persistent.
  • Ovarian Cancer is a tricky one and clever but like all cancers, early diagnosis is key for survival.
Apr 19
Allyson is wearing a red coat and yellow bobble hat. It is a selfie photo which also includes a man standing in the background, smiling at the camera. They are both in an open field which has a mountain and water in the background.

Raising Awareness of Cancer: Allyson’s Story

By Awareness and Early Diagnosis, Personalised Care
The image shows Allyson with short hair and earrings. She is looking at the camera smiling. In the background their are company logos displayed on a white background.

Allyson lives in the East Riding of Yorkshire and began her career in the NHS at the age of 17. After retiring in 2018, Allyson noted that she had ‘never really been ill’ until she was diagnosed with breast cancer after attending a breast screening appointment in 2019.

Here you can read what happened after her diagnosis and how she is now helping to support others receiving personalised care.

“My breast cancer was identified during a breast screening appointment. Following my diagnosis, I underwent surgery and 15 sessions of radiotherapy.

“After finishing up treatment for breast cancer, I wanted to do something to raise money for Breast Cancer Now, so I applied to do The Moonwalk in London (walk 26.2 miles at night!).”

In December 2019, Allyson was training for the Moonwalk event and walking two miles a day but despite regular exercise, Allyson had started to notice that she was putting on weight around her stomach and in March 2020, she also started experiencing stomach pains.

“I spoke to my GP and one of my prescribed drugs, which prevented osteoporosis (a potential side effect of breast cancer) had recently changed from a branded product to the generic drug, so we thought this may be the cause. Since it was the start of the pandemic, seeing a GP for a stomach ache didn’t feel appropriate, but it only got worse over the next few weeks and by May 2020, I looked five months pregnant. I decided to contact my GP again and this time I was booked in for a face-to-face appointment.”

Allyson’s GP submitted a referral for an urgent scan however, two days later her symptoms had become worse so she returned to the GP and was admitted to hospital for a CT scan. Whilst in hospital, Allyson had six litres of fluid drained and five days later she was told that she had ovarian cancer.

“I was very weak and frightened. Following an MRI scan, it was decided I would have four sessions of chemotherapy and in September 2020 I underwent surgery.

“When I was diagnosed, I didn’t know the symptoms of ovarian cancer but I’d encourage women to familiarise themselves with B.E.A.T.

“As women, we tend to accept stomach pains and bloating but it’s important to understand what’s normal and speak to your doctor if you’re experiencing symptoms that don’t seem right.”

Coming to terms with a cancer diagnosis

“Receiving the ovarian cancer diagnosis was devastating for me and my family. It felt like being woken up in the middle of the night and thrown into the ocean without a life raft. I was so frightened and all I could think about was my death. I felt so alone.

“My husband became my carer and made sure I was eating and drinking properly. After a few months, I started to feel stronger physically and mentally and wanted to take back some control. I began looking at my diet and exercise, as well as investigating ways to manage my mental health.

Allyson is looking at the camera and smiling. She is wearing a black and white polka dot blouse and has a shaved head.

“Women with ovarian cancer are three times more likely to develop mental health problems and I knew I was struggling. Thankfully, I found Ovacome, an ovarian cancer charity that supported me in my time of need.

“Through Ovacome, I met other women with a diagnosis who have since become dear friends that I couldn’t have managed without. I was a strong, independent woman when I was diagnosed with cancer for the second time, but it made me feel vulnerable, yet determined to do something to help myself and other women with a diagnosis.”

“I knew I needed to get fit for surgery and to help with the recovery after, so when I saw a challenge to run 60 miles for Cancer Research UK, I decided to try and walk it instead. I started to walk again, albeit slowly on some days following the chemotherapy. I was very weak, but feeling the weather on my face made me feel so much better.

“In the month prior to my surgery, I walked 70 miles. It wasn’t easy but I was determined to be as fit as I could be. In the month after surgery, I’m proud to say I walked 26 miles and have continued to walk every day since, whatever the weather.

“Walking has been my salvation. As I came to the end of my chemotherapy treatment, I set a goal of walking 1000 miles in 2021.

“When I realised I was walking a marathon a week, my goal changed to 52 marathons in 52 weeks. Sometimes I’d walk with my husband, other days alone, in silence, listening to the sound of each step like a sort of meditation.

Allyson is wearing a red coat and yellow bobble hat. It is a selfie photo which also includes a man standing in the background, smiling at the camera. They are both in an open field which has a mountain and water in the background.

“There were other times where I struggled, too, usually because of the ‘scan anxiety’ common among women like me. Slowly, I learned to face my fears. One day I loudly sang Gloria Gaynor’s I Will Survive while sobbing, which helped with my ‘I can do this!’ attitude. Luckily, we live in the countryside, so nobody saw me!

Walking together

“During one of my walks, at a time when I was receiving lots of messages of support from others, I came up with the idea of creating a virtual walking group for women with ovarian cancer. I got in touch with Ovacome, who had helped me previously, and we created the Walk With Me group.

Walk With Me is a friendly and supportive group that helps people with Ovarian cancer to achieve their individual walking goals. The group connects virtually on WhatsApp to share friendship, encouragement, stories, and photos of the wonderful things they see on their walks. We also have a Strava club where people can share their routes and congratulate each other.

Allyson is stood in the snow with her arms out wide. She is holding walking sticks and dressed for cold weather.

“Walk With Me isn’t about the distance; it’s about supporting each other through ovarian cancer and sharing our experiences. With the support of the women in the group, I achieved my goal and walked 55.3 marathons in 52 weeks. That even included a few weeks with plantar fasciitis, but nothing was going to stop me!

“I now only do things that bring me joy every day and walking has become that for me, I face my fears as they arise, but know whilst cancer has changed me, it does not define me, but has been a real opportunity for change in my life for which I am grateful.”

Apr 11

Under 16 Cancer Patient Experience Survey

By Involvement Opportunities, Personalised Care

Children under 16 who received NHS cancer care during 2021 are being invited to take part in the Under 16 Cancer Patient Experience survey.

The NHS wants to hear from children and young people, and their families, about their experiences so it can continue to improve the care and services.

A diagnosis of childhood cancer understandably has a devastating impact on the emotional health and wellbeing of the child and their family, both during and after treatment. Children and young people’s treatment and experience of cancer differs greatly from adults and we recognise the need for a personalised approach to their cancer care.

It’s so important for us to listen and learn from children and young people in order to provide them with the best possible care and experience throughout treatment and to reduce the impact it has on them later in life.

The Under 16 Cancer Patient Experience Survey will inform how the NHS delivers cancer services with the aim to radically improve the outcomes for children and young people affected by cancer.

If you receive an invitation in the post please complete the survey.

For more information visit www.under16cancerexperiencesurvey.co.uk.

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