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Zoe, Humber, Coast and Vale's Project Officer.

Shielding during Covid-19

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Updated Shielding Advice – 1st June 2020

The government has updated its guidance for people who are shielding. People who are shielding remain vulnerable and should contain to take precautions but can now leave their home if they wish, as long as they are able to maintain social distancing.  For up-to-date guidance, please click here.  

Over the last few weeks, people who are clinically extremely vulnerable from Covid-19, including around 200,00 cancer patients, have received a letter from the NHS advising them to stay at home until at least the end of June to minimise their risk of infection.

Zoe Bounds, Project Officer at Humber, Coast and Vale Cancer Alliance, received her letter on 7th April and has now been shielding for five weeks. Having had a first hand experience of shielding and needing to access NHS services during the coronavirus pandemic, Zoe is sharing her top tips for shielding and encourages anyone experiencing symptoms of cancer not to delay contacting their GP.

Zoe’s top tips whilst shielding during the coronavirus pandemic:

Whilst shielding, Zoe needed to contact her GP after becoming concerned about a potential symptom of cancer:

A few weeks into shielding, I experienced some pain and symptoms that could have been linked to cancer and particularly with my history of cancer, I wanted to get them checked out.

Worried about the risk of infection, Zoe was anxious to attend a GP appointment but after being reassured by the measures that had been put in place, Zoe is now urging others to contact their GP if they are experiencing signs and symptoms of cancer:

For the latest information and shielding guidance, please visit gov.uk.

If you or someone you know is shielding at home because of coronavirus, you can request support from NHS Volunteer Responders.

Cancer Alliance News – May 2020

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Click here to view the latest edition of Cancer Alliance News

In this edition, we discover how cancer support groups are adapting to offer continued support during the coronavirus pandemic and Yvonne Elliott, Managing Director at Humber, Coast and Vale Cancer Alliance, outlines the work that is taking place to ensure patient and staff safety during Covid-19.

Read about how our Cancer Champion project is helping to raise awareness of cancer within educational establishments, find out how radiology home work stations are helping to support cancer diagnosis and hear from our newly appointment Macmillan Communication and Engagement Officer, Liv Griffiths, as she starts her role within the Alliance.

If you would like to feature in our next edition, please email [email protected]

Click here to download a PDF version of Cancer Alliance News.

NHS warning to seek help for cancer symptoms, as half of public report concerns with getting checked

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England’s top cancer doctor has urged people not to hesitate to get checked as new research revealed that nearly half of the public have concerns about seeking help during the coronavirus pandemic.

One in 10 people would not contact their GP even if they had a lump or a new mole which did not go away after a week, the survey found.

Another third of people would worry about seeking help, according to polling carried out by Portland.

Getting coronavirus or giving it to their family were among the top reasons that people would not come forward when they have cancer symptoms along with fears that they could be a burden to the health service.

Professor Peter Johnson, the NHS clinical director for cancer, stressed that NHS staff had worked hard to make sure people can get cancer checks and treatment safely so there is no need to delay.

Waiting to get help could have serious consequences for patients and put a greater burden on the NHS, Prof Johnson said.

Online consultations mean people do not necessarily need to go to GP surgeries for check-ups while COVID-free cancer hubs have been set up to provide surgery along with independent sector hospitals who have signed an unprecedented deal with the NHS.

Virus protected hubs are up and running in 19 areas of the country to date so people can have their operation safely with thousands of patients already having treatment through a hub.

Professor Peter Johnson, NHS national clinical director for cancer, said: “NHS staff have made huge efforts to deal with coronavirus but they are also working hard to ensure that patients can safely access essential services such as cancer checks and urgent surgery.

“From online consultations to the roll-out of cancer treatment hubs we are doing all we can to make sure patients receive the life-saving care that they need.

“The wishes of patients and their families will always come first, and we have to make sure that people feel safe coming to hospitals, but my message is clear: people should seek help as they always would.

“We know that finding cancer early gives us the best chance to cure it, and ignoring potential problems can have serious consequences now or in the future.”

Prof Johnson’s call follows sharp drop in cancer referrals as patients are not contacting their GP for health advice.

A major public information campaign launched last week to encourage people to contact their GP or 111 if they have urgent care needs and to attend hospital if they are told they should.

Cancers are detected earlier and lives are saved if more people referred for investigation for checks.

Lynda Thomas, Chief Executive at Macmillan Cancer Support, said: “Macmillan wholeheartedly welcomes this NHS campaign encouraging people to contact their GP if they are experiencing the signs of cancer. We know that people are worried about the risk of infection from coronavirus and the pressure the NHS is already under.

“We urge you not to put it off, and don’t think you’re not a priority during coronavirus. Safeguard your own health and get any concerns checked out. Not diagnosing and treating many cancers fast makes treatment harder and can reduce the chance of survival.”

Natalie Haskell, CEO of Breast Cancer Charity CoppaFeel! said: “We know despite coronavirus, breast cancer remains the most common cancer in the UK and many people will be worrying about changes to their breasts during this period. At CoppaFeel! we are dedicated to educating people about the importance of checking themselves and presenting early to the GP if they notice any unusual, persistent change. Breast cancer is very treatable if found early and we urge people to listen to the NHS and continue to seek out their GP as normal if they are concerned about symptoms.”

Michelle Mitchell, Cancer Research UK’s chief executive, said: “It’s understandable that people might be worried about leaving their home during the pandemic or think the NHS is too busy, but you should still contact your doctor if you’re worried about signs and symptoms or notice a change that isn’t normal for you. If you’re reluctant to visit your GP in person, you can contact them for a virtual appointment. In most cases it won’t be cancer, but let your doctor decide as then your case will be tracked and if you do receive a cancer diagnosis, then you will receive treatment as soon as it’s safe to go ahead.

“The earlier a cancer is diagnosed, the more likely it is treatment will be successful and the higher the chance of survival. So even in these stressful times it’s vital people don’t delay seeking help with cancer symptoms.”

Jane Lyons, CEO of Cancer52 said: “It’s so important that people who think they might have a cancer symptom get in touch with their GP.  Putting off getting in touch won’t be helpful in the long run so please do take that first step. It is important to remember that most of the time symptoms that could be cancer don’t turn out to be cancer, and if they are, the sooner you get some help the better.”

Gemma Peters, Chief Executive of Blood Cancer UK, said: “The earlier blood cancer is diagnosed the better. If you’re worried about symptoms which could be blood cancer, such as unexplained weight loss, bruising or bleeding, then get in touch with your GP. The NHS wants to help you. Let them.”

“Cancers of any kind don’t stop simply because we’re in the midst of a pandemic, and for those less common cancers where symptoms might be vague, or where they can develop in any part of the body like sarcoma, it makes it even more essential to have any suspicious symptoms looked at as soon as possible.

“We need to make sure people still contact their GP if they are worried about cancer, and campaigns like this play a crucial role in making that happen.”

‘NHS services remain open if you need medical help’, doctors tell people in Humber, Coast and Vale

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Doctors in Humber, Coast and Vale are keen to remind the public that NHS services remain open to help them with their serious health conditions, amid concern that some people are putting off seeking medical help during the coronavirus (COVID-19) pandemic.

Although hospitals in Humber, Coast and Vale are busy as they care for people who have contracted coronavirus, they still have capacity to treat patients with other serious health concerns.

Similarly, GP practices, pharmacies and other health and care services are open to help people who need help for conditions other than coronavirus. The plea from doctors comes as evidence suggests that some people are not contacting hospitals or GP practices despite having serious health conditions, because they know that healthcare services are busy or because they are worried about visiting healthcare services in case they contract coronavirus. But doctors are urging people not to delay seeking medical help for serious health conditions, because the sooner they seek help the better the outcome is likely to be.

Dr Andrew Phillips, a local GP and Clinical Lead for the Humber, Coast and Vale Health and Care Partnership’s Urgent and Emergency Care Network, said:

“People with long-term conditions should continue to get support from their GP, specialist hospital teams or community services if they feel that their condition is deteriorating. Please do not let your anxieties about COVID-19 affect whether or not you attend A&E if you feel unwell.

“Please seek medical attention early because if you don’t you run the risk of your condition becoming far worse and possibly not recovering from the condition and becoming as well as you were before.

“If you are advised by a healthcare professional to attend a hospital or GP practice for a face-to-face assessment you should be confident that you will be assessed in a safe environment.”

If you need to use the NHS for reasons other than coronavirus, in the first instance you should use NHS 111 (by phoning 111 or visiting www.111.nhs.uk) or contact your GP or local pharmacy.

All healthcare services are following strict infection control measures to protect patients and staff during the coronavirus pandemic.

Dr Kate Wood, a critical care doctor and Medical Director at Northern Lincolnshire and Goole NHS Foundation Trust, said:

“Since COVID-19 we’ve separated the emergency departments in to two different areas – one for patients who are suffering from potential COVID-19 symptoms, and the other side is for patients with non COVID-19-related illnesses. We do try really hard to protect people so please don’t worry about coming in to our emergency departments.”

Parents are among those people thought to not be seeking medical help when their children are displaying worrying symptoms. Dr Nigel Wells, a local GP and Clinical Lead for the Humber, Coast and Vale Health and Care Partnership, said:

“We’re noticing that children aren’t attending our services and are not being brought to GP practices when they probably should have been. If your child is unwell and you’re worried about what to do please contact NHS 111, or your local pharmacy or local GP surgery.”

Dr Phillips, Dr Wood and Dr Wells have produced some videos to help reassure people what to do if they require medical help during the coronavirus pandemic. These videos can be viewed here.

For more information on how to find the most appropriate NHS service for your needs visit www.nhs.uk.

Visit www.nhs.uk/coronavirus for advice on coronavirus, including information about symptoms, isolation guidance and what you can do to help the NHS.

New Managing Director appointed to Humber, Coast and Vale Cancer Alliance

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The Humber, Coast and Vale Cancer Alliance has appointed a new Managing Director, Yvonne Elliott.

Yvonne started with us on 27th March 2020 and, over the next few months, will be spending time speaking with colleagues and the community as she transitions into her new role.

On beginning her new position during the COVID-19 pandemic, Yvonne said,

“It is important that Humber, Coast and Vale Cancer Alliance is there to offer support and assistance to all our stakeholders in these challenging and ever-changing times. That includes patients, primary care, clinical commissioning groups, and hospital trusts, as well as the third sector – all with regards to the coordination and provision of cancer services across Humber, Coast and Vale.

We are here to help, to offer support, and to come together so that our colleagues at the front line of delivering cancer care can focus their efforts on patients. We will continue to work with our partners in a way that provides them with assurance and will respond flexibly to support them at this time.”

Yvonne is an experienced Executive Director with a career spanning services across both primary and community care. She joins us from Primary Care Sheffield where, as Deputy Chief Executive, Yvonne led on the development of new models for primary care at scale. Yvonne is also the joint Senior Executive for the community mental health transformation national programme of change.

Before this, Yvonne was Deputy CEO for City Health Care Partnership in Hull and East Riding. During her career, she has gained considerable experience in leading and mobilising large scale tenders and implementing complex organisational change at scale.

We extend a warm welcome to Yvonne.

Cancer Alliance Conference

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The first Humber, Coast and Vale Cancer Alliance Conference took place at York Racecourse on Thursday 5th March 2020.

Over 150 people attended the event including people living with and beyond cancer, healthcare professionals and representatives from organisations such as Intelerad, Cancer Research UK and Healthwatch.

The event consisted of snapshot presentations which showcased and celebrated the work that is taking place across the Alliance. Among the speakers was David Fitzgerald, National Cancer Programme Director from NHS England who spoke of the impact of the NHS Long Term Plan for cancer.

Delegates also heard from the Positive Note Choir, who highlighted the importance of on-going support after a cancer diagnosis and performed at the event. Bill, who is a member of the Positive Notes Choir, said:

“I have been a member of Beverley Male Voice Choir for a few years and joined the Positive Note Choir after hearing about it at my first  ‘Living With and Beyond Cancer’ outpatient appointment in November 2018.

I’m very aware of the benefits of singing both for physical and mental wellbeing,and I’ve made lots of new friends through singing with Positive Note. It is also an opportunity to repay the NHS in some small way by raising funds for Macmillan Cancer Support at Castle Hill Hospital.”

Phil Mettam, Chair of Humber, Coast and Vale Cancer Alliance hosted the event and said:

“Clinicians, managers, service users, and carers gathered in York to celebrate our cancer services, but also to challenge each other to do better. Our focus was on patients, on their outcomes, and on the quality of services. Not on organisations.

“Feedback has been resounding and positive and I would like to thank everyone for supporting our conference.”

“Many of the presentations emphasised the importance of early diagnosis, the earlier we diagnose the better the chance of a positive outcome, and the more cost-efficient the care is for the tax-payer. It will be a priority for our Alliance that over the next 5 years that we all focus on improving this position.

“We were inspired by examples of clinical innovations and excited by the contribution that science can play through the evolution of genomics.  On stage discussions between our clinical leaders gave us great confidence that our committed clinicians know the challenges ahead and have the experience and skills required to help improve cancer outcomes and services.

“For me, the highlight of the conference was the Positive Note Choir who opened and closed our event. These are people who have had their lives touched in some way by cancer, their stories are compelling, moving and uplifting.”

To download our report on all the feedback collected from the day, click here. Below you can view photos from the day and watch a video from the event.

Humber, Coast and Vale Cancer Alliance Conference

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Humber, Coast and Vale Cancer Alliance are proud to be hosting their first annual conference.

The aims of the event are to:

1. Recognise and celebrate the exceptional work that is taking place across the Alliance.

2. Look to the future including the impact of the NHS Long Term Plan and the Alliance’s Annual Delivery Plan.

3. Facilitate relationships and networking across the patch.

The conference will feature speakers from the national stage including Dame Cally Palmer, National Cancer Director for NHS England and David Fitzgerald, National Cancer Programme Director, as well as presentations from across the Humber, Coast and Vale area.

Click here to view a copy of the event programme.

If you would like to attend the Cancer Alliance conference, please email [email protected] to register your interest.

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