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Cancer Alliance

Help us help you stay safe in hospital

By Uncategorised

Hospital trusts across Humber, Coast and Vale region have been working hard to respond to the coronavirus pandemic to ensure the safety and quality of services for cancer patients.

Northern Lincolnshire and Goole NHS Foundation Trust, Hull University Teaching Hospitals NHS Trust and York Teaching Hospitals NHS Foundation Trust are putting arrangements in place to maintain capacity and provide high quality services for COVID-19 patients whilst cautiously increasing other urgent clinical services, important diagnostics, and surgery.

Dr Stuart Baugh, Clinical Director for Humber, Coast and Vale Cancer Alliance wants to reassure those patients who may be worried about coming into hospital at this time, that everything is being done to ensure patients’ safety and to support patients to understand what they should do when accessing services:

“Like the rest of the NHS, our number one priority for the last few months has been ensuring that all those who need urgent care – not only those with coronavirus – have been able to get it when they need it.

We will continue to ask patients to attend hospital only when it is really necessary. Where possible, appointments may be through video or over the phone.

If you are required to come to hospital you will be asked to take steps that reduce the risk of coronavirus being spread to staff and other patients.

This may include isolating at home for 14 days before admission for planned care (including day surgery), and only attending outpatient appointments if you do not have symptoms of coronavirus.”

“The health and wellbeing of all staff and patients remains our highest priority as we work to increase critical non COVID-19 services, and new ways of working are being put in place to ensure that our focus on safety remains.”

A national framework on reducing the transmission of COVID-19 in hospitals has been published by NHS England and NHS Improvement. Humber, Coast and Vale Cancer Alliance are working with local trusts to finalise an implementation plan for what that means for how we run cancer services across the region.

The priority is to minimise the transmission rate for the virus, with the aim of getting as close to zero as possible.

A woman sitting at a desk in a waiting room. There's a computer in front of her and she's writing with her right hand, and holding a telephone to her ear with her left.

Pancreatic Cancer UK continues to offer support during COVID-19

By Personalised Care

Registered charity, Pancreatic Cancer UK is providing a range of support for those living with pancreatic cancer.

The charity is a useful resource for anyone affected by pancreatic cancer and is offering the following help during the pandemic.

Support Line

A team of pancreatic cancer specialist nurses are available to offer information and support to anyone affected by the disease and can answer concerns related to coronavirus (COVID-19).

Freephone 0808 801 0707 Monday – Friday 10am – 4pm. Or email [email protected].

Expert information to order or download

Booklets and fact sheets, which have been reviewed by clinical experts, are available to order or download. The charity will regularly be adding new information about how people with pancreatic cancer can improve their wellbeing during the outbreak.

Discussion forum

Pancreatic Cancer UK’s online discussion forum is a supportive place where everyone affected by pancreatic cancer can be there for each other, any time of day or night. It is a place where you can discuss everything from how to navigate the healthcare system, to how to talk about cancer with your loved ones.

Nurses will be producing short video clips and blogs to help people access support and information. The forum can be accessed here.

Pancreatic Cancer during COVID-19 (PCC) Network

Pancreatic Cancer UK is developing a network which will aim to allow pancreatic cancer specialists to discuss and develop treatment and care pathways for patients with pancreatic cancer during the pandemic; develop and share consensus approaches; and allow clinicians to discuss specific, local issues with colleagues from across the country. It will support management planning for patients with pancreatic cancer and help the charity begin to create a database during the outbreak to inform future clinical decision making and clinical trials.

The below resources and support of the Network will be available throughout this time for you to access if and when you wish:

Virtual Meetings: attend/view virtual meetings to share and discuss the latest updates, approaches and challenges

Shared Folder: access the most up-to-date guidance notes around the treatment and care of pancreatic cancer in the UK during the pandemic

Newsletter: their newsletter will share a summary of the latest updates, documents, recorded webinars and any other useful information

Discussion Forum: the charity is looking into creating a secure forum for you to ask questions, share and collaborate with others

For access to any of the above, if you have any updates or information that would be useful for the wider community, or if there are any other ways Pancreatic Cancer UK can support you, please get in touch with the team.

Freephone 0808 801 0707 Monday – Friday 10am – 4pm. Or email [email protected].

Zoe, Humber, Coast and Vale's Project Officer.

Shielding during Covid-19

By Uncategorised

Updated Shielding Advice – 1st June 2020

The government has updated its guidance for people who are shielding. People who are shielding remain vulnerable and should contain to take precautions but can now leave their home if they wish, as long as they are able to maintain social distancing.  For up-to-date guidance, please click here.  

Over the last few weeks, people who are clinically extremely vulnerable from Covid-19, including around 200,00 cancer patients, have received a letter from the NHS advising them to stay at home until at least the end of June to minimise their risk of infection.

Zoe Bounds, Project Officer at Humber, Coast and Vale Cancer Alliance, received her letter on 7th April and has now been shielding for five weeks. Having had a first hand experience of shielding and needing to access NHS services during the coronavirus pandemic, Zoe is sharing her top tips for shielding and encourages anyone experiencing symptoms of cancer not to delay contacting their GP.

Zoe’s top tips whilst shielding during the coronavirus pandemic:

Whilst shielding, Zoe needed to contact her GP after becoming concerned about a potential symptom of cancer:

A few weeks into shielding, I experienced some pain and symptoms that could have been linked to cancer and particularly with my history of cancer, I wanted to get them checked out.

Worried about the risk of infection, Zoe was anxious to attend a GP appointment but after being reassured by the measures that had been put in place, Zoe is now urging others to contact their GP if they are experiencing signs and symptoms of cancer:

For the latest information and shielding guidance, please visit gov.uk.

If you or someone you know is shielding at home because of coronavirus, you can request support from NHS Volunteer Responders.

An image of Dan Cottingham, Cancer and End of Life Lead at NHS Vale of York

70% drop in Vale of York Cancer referrals as doctors urge people to visit their GP

By Awareness and Early Diagnosis, Cancer Diagnosis and Innovations

NHS Vale of York Clinical Commissioning Group, York Teaching Hospital NHS Foundation Trust and GP Practices from the Humber, Coast and Vale Cancer Alliance are working together to ensure cancer services continue safely, urging people not to delay seeking help if they notice any signs and symptoms of cancer.

Since the start of the coronavirus pandemic, across the Vale of York, there has been a 70% reduction in two-week referrals from GP practices to secondary care. A statistic which is extremely worrying to health professionals as they witness fewer patients making appointments to express their health concerns.

Dr Dan Cottingham, Cancer and End of Life Lead at NHS Vale of York Clinical Commissioning Group said:

Cancer hasn’t gone away because of coronavirus. There will still be people in our community experiencing signs and symptoms of cancer such as the sudden appearance of a lump, blood in their urine, or a change to usual bowel habits - and so it is vital these people contact their GP practice so a doctor can investigate and refer to a specialist if necessary.

GP appointments are still available for patients to talk through any concerns over the phone or via an online video consultation, and are working closely with cancer specialist teams at York and Scarborough hospitals to ensure urgent cases continue to be seen promptly.”

Accessing a GP has changed during the pandemic but GP practices are continuing to provide the same safe care they always have done.

People who are referred into York hospital for treatment or who are already on a course of treatment can expect the same quality of care, the way that care now looks however may have changed due to the restrictions of the pandemic.  York Teaching Hospital NHS Foundation Trust has redesigned services to enable the safe continuation of quality care during the pandemic.

Laura Milburn, Head of Cancer at York Teaching Hospital NHS Foundation Trust, said:

It is vital that patients experiencing concerning symptoms, especially those that could be cancer, contact their GPs for assessment during the pandemic.

GP and hospital services have had to change significantly to manage the impact of the pandemic but we want to reassure patients who are referred into our hospitals for investigation that we are still providing the same quality of care, just in a different way, ensuring all the appropriate measures in line with government guidance are in place to keep patients safe when accessing services.”

To support with cancer referrals and ongoing cancer services in the Vale of York area, the Humber, Coast and Vale (HCV) Cancer Alliance has accelerated the procurement of home working stations within our region to report from home during Covid-19.

Dr Oliver Byass, Clinical Director for Radiology, Humber, Coast and Vale Cancer Alliance said:

The collaborative reporting solution sits above our independent picture archiving and communication system (PACS) and work stations within our hospitals and will allow us, as individual radiologists, to report the ‘right test first time’ seamlessly across our organisations and this is going to be transformational as to how we work in the future.

Our work in modern radiology is a lot about diagnostics and trying to get the patient diagnosis both safely and as quickly as possible and we are very fortunate that modern radiology, CT, MRI and ultrasound have amazing diagnostic capabilities.”

For more information on seeking help during Covid-19, read our blog on what to do about possible cancer symptoms.

Cancer Alliance News – May 2020

By Uncategorised

Click here to view the latest edition of Cancer Alliance News

In this edition, we discover how cancer support groups are adapting to offer continued support during the coronavirus pandemic and Yvonne Elliott, Managing Director at Humber, Coast and Vale Cancer Alliance, outlines the work that is taking place to ensure patient and staff safety during Covid-19.

Read about how our Cancer Champion project is helping to raise awareness of cancer within educational establishments, find out how radiology home work stations are helping to support cancer diagnosis and hear from our newly appointment Macmillan Communication and Engagement Officer, Liv Griffiths, as she starts her role within the Alliance.

If you would like to feature in our next edition, please email [email protected]

Click here to download a PDF version of Cancer Alliance News.

NHS warning to seek help for cancer symptoms, as half of public report concerns with getting checked

By Uncategorised

England’s top cancer doctor has urged people not to hesitate to get checked as new research revealed that nearly half of the public have concerns about seeking help during the coronavirus pandemic.

One in 10 people would not contact their GP even if they had a lump or a new mole which did not go away after a week, the survey found.

Another third of people would worry about seeking help, according to polling carried out by Portland.

Getting coronavirus or giving it to their family were among the top reasons that people would not come forward when they have cancer symptoms along with fears that they could be a burden to the health service.

Professor Peter Johnson, the NHS clinical director for cancer, stressed that NHS staff had worked hard to make sure people can get cancer checks and treatment safely so there is no need to delay.

Waiting to get help could have serious consequences for patients and put a greater burden on the NHS, Prof Johnson said.

Online consultations mean people do not necessarily need to go to GP surgeries for check-ups while COVID-free cancer hubs have been set up to provide surgery along with independent sector hospitals who have signed an unprecedented deal with the NHS.

Virus protected hubs are up and running in 19 areas of the country to date so people can have their operation safely with thousands of patients already having treatment through a hub.

Professor Peter Johnson, NHS national clinical director for cancer, said: “NHS staff have made huge efforts to deal with coronavirus but they are also working hard to ensure that patients can safely access essential services such as cancer checks and urgent surgery.

“From online consultations to the roll-out of cancer treatment hubs we are doing all we can to make sure patients receive the life-saving care that they need.

“The wishes of patients and their families will always come first, and we have to make sure that people feel safe coming to hospitals, but my message is clear: people should seek help as they always would.

“We know that finding cancer early gives us the best chance to cure it, and ignoring potential problems can have serious consequences now or in the future.”

Prof Johnson’s call follows sharp drop in cancer referrals as patients are not contacting their GP for health advice.

A major public information campaign launched last week to encourage people to contact their GP or 111 if they have urgent care needs and to attend hospital if they are told they should.

Cancers are detected earlier and lives are saved if more people referred for investigation for checks.

Lynda Thomas, Chief Executive at Macmillan Cancer Support, said: “Macmillan wholeheartedly welcomes this NHS campaign encouraging people to contact their GP if they are experiencing the signs of cancer. We know that people are worried about the risk of infection from coronavirus and the pressure the NHS is already under.

“We urge you not to put it off, and don’t think you’re not a priority during coronavirus. Safeguard your own health and get any concerns checked out. Not diagnosing and treating many cancers fast makes treatment harder and can reduce the chance of survival.”

Natalie Haskell, CEO of Breast Cancer Charity CoppaFeel! said: “We know despite coronavirus, breast cancer remains the most common cancer in the UK and many people will be worrying about changes to their breasts during this period. At CoppaFeel! we are dedicated to educating people about the importance of checking themselves and presenting early to the GP if they notice any unusual, persistent change. Breast cancer is very treatable if found early and we urge people to listen to the NHS and continue to seek out their GP as normal if they are concerned about symptoms.”

Michelle Mitchell, Cancer Research UK’s chief executive, said: “It’s understandable that people might be worried about leaving their home during the pandemic or think the NHS is too busy, but you should still contact your doctor if you’re worried about signs and symptoms or notice a change that isn’t normal for you. If you’re reluctant to visit your GP in person, you can contact them for a virtual appointment. In most cases it won’t be cancer, but let your doctor decide as then your case will be tracked and if you do receive a cancer diagnosis, then you will receive treatment as soon as it’s safe to go ahead.

“The earlier a cancer is diagnosed, the more likely it is treatment will be successful and the higher the chance of survival. So even in these stressful times it’s vital people don’t delay seeking help with cancer symptoms.”

Jane Lyons, CEO of Cancer52 said: “It’s so important that people who think they might have a cancer symptom get in touch with their GP.  Putting off getting in touch won’t be helpful in the long run so please do take that first step. It is important to remember that most of the time symptoms that could be cancer don’t turn out to be cancer, and if they are, the sooner you get some help the better.”

Gemma Peters, Chief Executive of Blood Cancer UK, said: “The earlier blood cancer is diagnosed the better. If you’re worried about symptoms which could be blood cancer, such as unexplained weight loss, bruising or bleeding, then get in touch with your GP. The NHS wants to help you. Let them.”

“Cancers of any kind don’t stop simply because we’re in the midst of a pandemic, and for those less common cancers where symptoms might be vague, or where they can develop in any part of the body like sarcoma, it makes it even more essential to have any suspicious symptoms looked at as soon as possible.

“We need to make sure people still contact their GP if they are worried about cancer, and campaigns like this play a crucial role in making that happen.”

‘NHS services remain open if you need medical help’, doctors tell people in Humber, Coast and Vale

By Uncategorised

Doctors in Humber, Coast and Vale are keen to remind the public that NHS services remain open to help them with their serious health conditions, amid concern that some people are putting off seeking medical help during the coronavirus (COVID-19) pandemic.

Although hospitals in Humber, Coast and Vale are busy as they care for people who have contracted coronavirus, they still have capacity to treat patients with other serious health concerns.

Similarly, GP practices, pharmacies and other health and care services are open to help people who need help for conditions other than coronavirus. The plea from doctors comes as evidence suggests that some people are not contacting hospitals or GP practices despite having serious health conditions, because they know that healthcare services are busy or because they are worried about visiting healthcare services in case they contract coronavirus. But doctors are urging people not to delay seeking medical help for serious health conditions, because the sooner they seek help the better the outcome is likely to be.

Dr Andrew Phillips, a local GP and Clinical Lead for the Humber, Coast and Vale Health and Care Partnership’s Urgent and Emergency Care Network, said:

“People with long-term conditions should continue to get support from their GP, specialist hospital teams or community services if they feel that their condition is deteriorating. Please do not let your anxieties about COVID-19 affect whether or not you attend A&E if you feel unwell.

“Please seek medical attention early because if you don’t you run the risk of your condition becoming far worse and possibly not recovering from the condition and becoming as well as you were before.

“If you are advised by a healthcare professional to attend a hospital or GP practice for a face-to-face assessment you should be confident that you will be assessed in a safe environment.”

If you need to use the NHS for reasons other than coronavirus, in the first instance you should use NHS 111 (by phoning 111 or visiting www.111.nhs.uk) or contact your GP or local pharmacy.

All healthcare services are following strict infection control measures to protect patients and staff during the coronavirus pandemic.

Dr Kate Wood, a critical care doctor and Medical Director at Northern Lincolnshire and Goole NHS Foundation Trust, said:

“Since COVID-19 we’ve separated the emergency departments in to two different areas – one for patients who are suffering from potential COVID-19 symptoms, and the other side is for patients with non COVID-19-related illnesses. We do try really hard to protect people so please don’t worry about coming in to our emergency departments.”

Parents are among those people thought to not be seeking medical help when their children are displaying worrying symptoms. Dr Nigel Wells, a local GP and Clinical Lead for the Humber, Coast and Vale Health and Care Partnership, said:

“We’re noticing that children aren’t attending our services and are not being brought to GP practices when they probably should have been. If your child is unwell and you’re worried about what to do please contact NHS 111, or your local pharmacy or local GP surgery.”

Dr Phillips, Dr Wood and Dr Wells have produced some videos to help reassure people what to do if they require medical help during the coronavirus pandemic. These videos can be viewed here.

For more information on how to find the most appropriate NHS service for your needs visit www.nhs.uk.

Visit www.nhs.uk/coronavirus for advice on coronavirus, including information about symptoms, isolation guidance and what you can do to help the NHS.

Cancer Care Centres adapt services to offer continued support during COVID-19

By Personalised Care

Across the Humber, Coast and Vale region, Macmillan Information Centres are adjusting what they do to continue to provide valuable support for those affected by cancer.

While the centres are temporarily closed, people with cancer can be assured that support is still available. Cancer Care Centres at York Teaching Hospital NHS Trust, Hull University Teaching Hospitals NHS Trust and Northern Lincolnshire and Goole Teaching Hospital NHS Foundation Trust are offering support to patients, their families and friends over the phone.

Pat Chennells, Macmillan Information Facilitator for Scunthorpe, Grimsby and Goole Hospitals, said:

“It’s understandable that those affected by cancer may be anxious about the impact of coronavirus but I want people to know they are not alone. Macmillan Cancer Support has placed COVID-19 guidance on their website, and Cancer Care Centres within the Humber, Coast and Vale region have adapted their services to ensure emotional support is still available via telephone. I’d like to encourage people to get in touch if they are worried about the impact of COVID-19. We are still here to provide a listening ear and offer support to those who need it.”

Here is the information needed to contact each Cancer Care Centre during the coronavirus pandemic.

Cancer Care Centre at York Hospital 

Telephone: 01904 721 166
Lines open between Monday and Friday, 9am – 4.30pm.

Cancer Information and Support Service at Scarborough Hospital

Telephone: 01723 342 606
Lines open between Monday and Friday, 9am – 4.30pm.

Macmillan Information Centre at Queens Centre, Castle Hill Hospital

Email: [email protected]
Telephone: 01482 461154
Lines open between Monday and Friday, 9am – 4.30pm.

Macmillan Cancer Information Support Centre for Scunthorpe, Grimsby and Goole Hospitals

Telephone: 03033 305372 or 07858 924283
Lines open between Monday and Friday, 9am – 4.40pm.

Helping to support the continuation of cancer diagnosis during Covid-19

By Cancer Diagnosis and Innovations

Humber, Coast and Vale Cancer Alliance has accelerated the procurement of home working stations to enable the reporting workforce within our region to report from home during Covid-19.

Thirty home working stations, which have been funded through transformational monies, will be placed in reporters homes across Humber, Coast and Vale region to help alleviate any pressures caused by staff needing to self-isolate or reduce travel into acute sites.

The Cancer Alliance has worked with Northern Lincolnshire and Goole NHS Foundation Trust, York Teaching Hospital NHS Foundation Trust and Hull University Teaching Hospitals NHS Trust to agree where these stations are placed for maximum impact.

As well as supporting the continuation of cancer diagnosis in line with national guidance during covid-19, the home working stations will also support service delivery in the immediate post Covid-19 period and will enable collaborative working and increased capacity for reporting in the longer term.

As the Alliance move forwards, the work stations will form part of the Humber, Coast and Vale collaborative reporting solution, described below by Dr Oliver Byass, Clinical Director for Radiology at Hull University Teaching Hospitals NHS Trust:

“The collaborative reporting solution sits above our independent Picture archiving and communication system (PACS) and work stations within the various trusts and will allow us as individual radiologists to report the ‘right test first time’ seamlessly across our organisations and that is going to be transformational as to how we work in the future.

Our work in modern radiology is a lot about diagnostics and trying to get the patient diagnosis both safely and as quickly as soon as possible and we are very fortunate in the fact that modern radiology, CT, MRI and ultrasound have amazing diagnostic capabilities”

This work will help support the Alliance ambition of earlier diagnosis and better outcomes for patients, whilst delivering sustainable diagnostic services across the area.

Support for people with cancer during coronavirus

By Personalised Care

If you’re someone affected by cancer, it’s understandable you might be worried about coronavirus. While the nation stays at home, the pandemic is changing how organisations offer their help, but it doesn’t mean support is unavailable.

Below are some of the organisations where patients and others affected by cancer can find help and support from the safety of their homes – both local and national.

Local groups

Lindsey Lodge Hospice

On Facebook, Lindsey Lodge Hospice is sharing positive fundraising stories. The hospice is also posting some tips and ideas for ways to fundraise from your home, as well as competitions and fun activities for all ages to take part in.

York Against Cancer

The York-based charity is sharing positive stories and fundraising inspiration to lift spirits during this difficult time. They’re also providing details of organisations cancer patients can get in touch with, via phone or video call, for support if they’re struggling. There’s also a York Against Cancer Fun and Friendship Facebook group. Join for light-hearted content and keeping in touch with other patients.

York Breast Friends

The support group for those diagnosed with breast cancer is continuing with its usual agenda of support, fun, and friendship. While its monthly meetings aren’t currently happening, there are plenty of ways its members can stay in touch. York Breast Friends has its own private chat group, and is offering a variety of online, virtual and telephone services for its members.

HER Breast Friends

HER Breast Friends is for women and others diagnosed with breast cancer in Hull and East Riding. Each week on its Facebook, the group is hosting a number of activities, including a midweek quiz and, in collaboration with NHS staff, a social distancing Reiki session.

National groups

Macmillan Living With and Beyond Cancer Team

The team at Macmillan Living With and Beyond Cancer usually confidence-boosting workshops for anyone living with or beyond cancer. These workshops are now available at home, via online interactive video calls of around 8-10 people. Learn tips that’ll help you feel like you again, chat to others, and have all your questions answered.

Learn more about the workshops here.

Bowel Cancer UK

Bowel Cancer UK has launched a Coronavirus Hub on its website, offering health information, emotional wellbeing tips, event updates, and further resources for everyone affected by bowel cancer. This includes a handy coronavirus glossary, which explains the difference between shielding, self-isolation, and social distancing.

Roy Castle Lung Cancer Foundation

The Roy Castle Lung Cancer Foundation is the only UK lung cancer charity dedicated to helping everyone affected by the disease. This page on the charity’s website has information specifically for lung cancer patients during the pandemic, as well as creative ideas for fundraising, without putting yourself or others in danger.

CLLSA

On Facebook, CLLSA is hosting live video Q&As with health professionals to address any concerns that Chronic Lymphocytic Leukaemia patients and their families may have regarding COVID-19. The group is also sharing up to date advice for patients to follow during the pandemic.

Prostate Cancer UK

Prostate Cancer UK’s website has all the details about coronavirus for men who have, or have had, prostate cancer. The charity’s specialist nurses are also available to chat to for any patients whose questions aren’t answered on the page, or for anyone looking for some extra support.

We’re always on the lookout for support groups to share with our community. If you’re part of a group that hasn’t been mentioned here, please get in touch at [email protected] and we’d be happy to shout about what you do.

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