Stakeholder Updates

The CCG cancer improvement and assessment ratings 2017-2018 have been published by NHS England and demonstrate the scale of the challenge for our cancer services and teams across the Humber, Coast and Vale health and care system.

The assessment measures progress against national ambitions.

• One year survival should reach at least 75% by 2020/21 for all cancers
• At least 62% of cancers should be diagnosed at stage 1 or 2 by 2020/21

At least 85% of patients should begin their treatment within 62 days of urgent referral by a GP

• Continuous improvement in patient experience

Whilst cancer teams across Humber, Coast and Vale are working incredibly hard to improve services, care and outcomes for people with cancer significant challenges remain, which is reflected in the ratings we received.  These challenges include: difficulties recruiting and retaining the skilled and experienced workforce that we need; challenges to meet the increasing demand for diagnostic tests and continuing inequalities in health outcomes between the most and least deprived areas in our Alliance.

Working together through the Cancer Alliance will enable us to make more rapid progress to improve cancer care. Together we are working to ensure more people are diagnosed sooner, treated more quickly and are able to live well with and beyond cancer.

The improvement and assessment rating date is available on the NHS England website or click on the following link to the assessment

https://www.england.nhs.uk/wp-content/uploads/2018/08/ccg-cancer-assessment-2017-18.pdf

Humber, Coast and Vale Cancer Alliance

July 2018 Monthly Update

As part of our communications and stakeholder engagement plans, the Cancer Alliance would like to ensure that our stakeholders are kept informed on the latest news and developments across the Alliance.

National Cancer Alliance Leadership Workshop – 4^th June 2018 

Jane Hawkard, SRO and Rafael Cicci, Programme Director and Stuart Baugh, Clinical Lead, attended a Cancer Alliance Leadership Day on 4^th June, organised by the NHS England national cancer programme team. Those presenting at the meeting were National Cancer Director, Cally Palmer; David Fitzgerald, National Cancer Programme Director, and Simon Enright, NHS England’s National Director of Communications.

Key themes of the event were the vision for Alliances as cancer system leaders, long-term ambitions for Alliances through to 2021 and also priorities for 2018/2019. Thanks were expressed to everyone across the system working hard around recovery of the 62-day cancer waiting time standard, and it was made clear that priority should continue to be given to achieving this.

Discussion sessions focused on clinical engagement; involving patients in transformation programmes, Alliance governance, public engagement and communications. West Yorkshire and Harrogate Alliance, Northern Cancer Alliance, along with London Cancer Vanguard colleagues, led a workshop sharing their good practice around communications and engagement. Humber, Coast and Vale Cancer Alliance have now met with WY&H and Northern CAs and will link closely moving forward to share best ideas and practice through peer support.

NHS Cancer Programme – Self-assessment framework for Cancer Alliances

In 2018/19 the NHS Cancer Programme aims to support alliances develop as system leaders.  To support this, the NHS Cancer Programme has developed a self-assessment framework to collect stakeholder views to inform our future development. As one of nineteen cancer alliances across England, overseen by the NHS England Cancer Programme, we have been asked to complete the self-assessment framework.

A range of criteria have been identified across five domains that have been recognised as key factors in supporting Alliances in delivering meaningful transformation at scale and pace.

This self-assessment framework will allow Cancer Alliances to reflect on their system development to date and to garner feedback from their immediate stakeholders. Through consideration of the criteria, Alliances will build a holistic view of their Alliance as a system, using this framework as a tool to draw out focus areas for future improvement.

How the information will be used and shared
Cancer Alliances will use the framework to support discussions on the key development areas for their Alliance as a system.  The self-assessment framework is not a performance management tool. The detailed returns from local stakeholders are for the Alliance to consider as they wish and we recommend follow-up discussions locally with stakeholder contributors. Summaries from the Alliances’ discussions with regions will be used to shape a national development offer, ensuring this is targeted most usefully to support Cancer Alliances strengthen as systems and deliver impactful change for cancer patients.

We are keen to derive the maximum benefit from this self-assessment and have asked a number of key stakeholders across the Alliance to complete the assessment.  Please could all feedback be sent back to [email protected] by 11^th July 2018, thank you.

National Cancer Rehabilitation Pathways

In 2013 the National Cancer Action Team at Macmillan Cancer Support worked to establish the evidence base for cancer rehabilitation and the subsequent interventions which take place at each stage. This pathway is the culmination of that work. The pathways are provided as a guide to the types of rehabilitation interventions which patients may need at different stages.

Following feedback from AHPs across the UK there were many requests that the cancer rehabilitation pathways be available and accessible to all working with those affected by cancer. We have listened to this feedback and bring you the output of phase 1 of a two-phase project. In this phase this version of the cancer rehabilitation pathways has been refreshed (from the original NCAT work described above) with the prime aim of ensuring the pathways are accessible and navigable to healthcare professionals.

Hard copies will be available very soon directly through Be.Macmillan.org

Phase 2 of the work will start in July 2018 and will aim to ensure that the pathways link to current national policy and have further content added based on emerging evidence that has developed over the last few years. Please use the following Twitter hashtag: #CancerRehab if you would like to tweet about the pathways.  The live link for the interactive pdf is:

https://www.macmillan.org.uk/assets/macmillan-cancer-rehabilitation-pathways.pdf

Please feel free to share with colleagues across the Alliance.

Cancer Accelerated Design Events – Summary WebEx

NHS Horizons and NHS England hosted a summary WebEx for delegates who attended the Genomics & the Personalisation of Cancer Care Accelerated Design Events that were held in April and May in London, Birmingham, Leeds and Bristol.

Over 100 people were able to join the session that shared the key themes and proposed 16 recommendations from across the four regional events. These recommendations will be shared with NHS England and Genomics England in the form of national, regional and local action plans so that we can continue to embed genomic analysis into routine cancer care.

If you would like to view the WebEx it has been recorded and you can view it on YouTube here. The slides from the WebEx can be found on Dropbox in this folder.  All of the presentations from the four earlier events are available to view and download on the GMC Network here.

NHS England’s Genomics Implementation Unit There will be delivering more events in the future to ensure delivery on the recommendations.

Awareness and Early Diagnosis Programme

The Awareness and Early Diagnosis Delivery Board met on 15^th June.  Key discussions points included:

Gateway C

Gateway C, the Primary Care Education platform, is an on-line learning tool to support primary care clinicians in the diagnosis and management of patients.  A presentation to primary care clinicians, commissioners and other colleagues from across the Alliance, to understand and review Gateway C implementation options, potential opportunity and impact will be made on 11^th July, 6.30pm to 8.30pm, Mercure Hotel, Willerby. The aim of the presentation will be to:

• Gain an oversight of the system
• Understand the background/content and design (by GPs and patients)
• Look at how it will benefit primary care within HCV and improve the patient experience
• Put into context where Gateway-C fits into the HCV Programme
• Consider how it can support GPs and all practice staff (CPD accredited)
• Influence how we might want to implement it
• Discuss future of the model and funding post March 2019

If you would like more information on Gateway C or the event, please email us at comms.hcvcanceralliance.nhs.net

Lung Health Check Service

The procurement of the Lung Health Check Service with low dose CT scan is underway with ambition to commence the pilot in October 2018.  Patient and public focus groups to support the development of a social marketing campaign are currently being scoped and location of the Lung Health Check van is being determined but will be placed in a number of areas across the HCV Cancer Alliance.

Cancer Champion Programme

Sophie Lancaster and Emma Lewin our Volunteer Co-ordinators for the Cancer Champion Programme continue to build resources, training and stakeholder networks across the Alliance. This will support the ambition of achieving 400 cancer champions in 2018-2019.  The Volunteer Co-ordinators will commence the delivery of Cancer Champion training to new volunteers over the coming weeks.

Bowel Screening and qFIT: (low risk symptomatic patients)

The implementation business case has now been developed and presented to the Awareness and Early Diagnosis Board in June.  The ambition is to achieve full roll-out by January 2019.

Diagnostics Consolidation Programme:

Demand and Capacity

A key theme to emerge from the demand and capacity work included the need for collaborative approaches to workforce planning and future locations/procurement of kit.

A half day demand and capacity workshop was held on 20^th June 2018 at Goole Hospital attended by professionals from across the Alliance were in attendance.  The event was chaired by Wendy Scott, Chief Operation Officer and Programme Sponsor (Diagnostics), York Teaching Hospital NHS FT.  Key messages from the workshop highlighted, not just current gaps, but future demand and capacity gaps over the next five years. Other themes to emerge from the demand and capacity work included the need for collaborative approaches to workforce planning and future locations/procurement of kit and the need to understand the future potential of technological advances such as Artificial Intelligence.

Output from the three workshop groups on the day, are being collated and will be sent out to stakeholders early July.  The Diagnostic Programme Board will discuss the outputs from the workshop, how to progress and next steps, when it meets on 24^th July 2018.

Any stakeholder who has not yet had the opportunity to input in to this programme of work, who would like to, please do get in touch with Mikki Golodniski, Diagnostics Programme Lead at [email protected]

Network Model Plans

As reported in June’s Monthly Update, the Alliance has worked in partnership with North West London Cancer Alliance to   carry out initial market engagement with potential suppliers as part of the pre-procurement stage of the networked model of Radiology reporting.  Further market engagement at a local level is now underway and will establish the readiness of the market and ensure expectations are realistic.  The HCV Cancer Alliance is sharing the learning and experiences from this programme of work with other Cancer Alliances with similar aspirations in order that the best possible service can be delivered across Cancer Alliances.

A national professional advisory panel with HCV representation is supporting the process and will further help to set expectations and advise on the state of the market. At this point, procurement is expected to be commence end of July/early August with a view to award a contract December 2018/January 2019.

Pathology

The procurement process for Pathology will commence September with the approach to standardisation being replicated from the radiology procurement.

Treatment and Pathways Programme

RAPID pathways for Lung, Colorectal and Prostate are significant precursors to delivering the 62 day operational performance targets.

HCV CA is establishing processes to deliver locality and HCV implementation plans which show demonstrable progress towards developing the RAPID pathways.

Lung Rapid Diagnostic and Assessment Pathway

To assist this programme, Rita Trewartha from Attain will be providing additional support to the HCV Cancer Clinical Lead for the Lung Pathway working with John Hancock, Programme Lead for the Treatment and Pathways programme and Gavin Anderson, Clinical Lead for the diagnostic and assessment part of the pathway, Hull & East Yorkshire NHS FT.

Prostate Diagnostic and Assessment Pathway

To assist this programme, Beverley Futia, from Attain will be providing additional support, working again, with John Hancock and Matt Simms, Clinical Lead, Hull & East Yorkshire NHS FT.

Colorectal Rapid Diagnostic and Assessment Pathway

John Hancock, Treatment and Pathways Programme Lead to the HCV Cancer Alliance will be leading the work on this work with Chitsabean Praminthra (Chitz), Clinical Lead.

To assist and support the planning and implementation of the Colorectal Rapid Diagnostic and Assessment Pathway across the Health and Care Partnership (formerly STP) footprint, a stakeholder event is planned for 13^th September, venue and location to be confirmed.  The purpose of the event is to progress implementation of the Colorectal Rapid Diagnostic and Assessment pathways across Humber Coast and Vale in a way that supports collaborative working.

Stakeholder events for Lung and Prostate pathways are also being considered and stakeholders will be invited once timings and location have been established.

Lung and Prostate Webex

A webex is being delivered on 14 July re timed pathways for Lung and Prostate Cancer for more information [email protected]

Data/Information:

A copy of the HCV cancer alliance dashboard for the period May 2017 to April 2018 is available by contacting us at [email protected]

Communications and Engagement:

A HCV Cancer Alliance Communications and Engagement strategy will be developed and presented to the Cancer Alliance System Board Autumn 2018.  A Communications and Engagement Delivery group, with key stakeholders across the Alliance footprint, has been set-up to develop the strategy and supporting delivery plan.  The strategy and delivery plan will set out how we will engage and communicate with our patients, public, staff and other key stakeholders.

For further information and to be involved in the development of the strategy and future programme of work, please get in touch at [email protected]

Other updates/events:

Support Assistant Vacancies within the Cancer Alliance

The Cancer Alliance is currently advertising for support assistants to join our Awareness and Early Diagnosis Programme and also our Treatment and Pathways Programme.  For further information, please cut and paste the link below into your web browser or access via NHS East Riding CCG on jobs.nhs.uk.  Closing date is 15^th July 2018

https://www.jobs.nhs.uk/xi/vacancy/a170209d395da561cd08c295440649d0/?vac_ref=915150034

Be Clear on Cancer – Blood in Pee Campaign

The Be Clear on Cancer ‘Blood in Pee’ campaign is being re-run by Public Health England from 19^th July to 23^rd September 2018. The aim is to raise public awareness of visible haematuria which is a key symptom of bladder and kidney cancer – and encourage those who notice this symptom to see their GP. The campaign will particularly target men and women aged over 50 in lower social and economic backgrounds. The theme will be ‘owning the pee break’ – an ideal time at which to raise awareness of the importance of taking action.

You can find out more about the campaign and order free campaign resources – including resources for display in washrooms – from the Public Health England Campaign Resource Centre. Washroom packs can be ordered via: (https://partnerships.wufoo.com/forms/z1m7h1nu1s926cm/):

If you have a number of settings you would like to order, please email [email protected]

Yorkshire Cancer Patient Forum

The Yorkshire Cancer Patient Forum is an independent organisation representing a voice for people affected by cancer in Yorkshire and Humber.

The Forum held its AGM on 29^th June in Leeds where the launch of a Community Panel funded by the West Yorkshire and Harrogate Cancer Alliance took place.  Hosted by Healthwatch Wakefield the Cancer Alliance Community Panel will bring together volunteers to form a panel from cancer survivors, carers and members of the public who have an interest in cancer services.  The panel aims to improve cancer care by working closely with the WY&H Cancer Alliance to support a broad number of work-streams including Living with and Beyond Cancer and Prevention and Early Diagnosis.  Humber, Coast and Vale Cancer Alliance has made links with the Community Panel and plans to work closely with the Panel and Cancer Alliance to establish if this model of patient and public involvement could be replicated in the HCV CA area.

10 Steps to Even Better Patient Engagement – 20^th September 2018

Humber, Coast and Vale Cancer Alliance have arranged for Gillian Driscoll of the Nursing Directorate at NHS England to deliver a training session for colleagues across the area. The session will help support staff to involve patients and the public in their work in a meaningful way to improve services, including giving clear advice on the legal duty to involve. I would encourage staff to take advantage of this training session which is free to colleagues across the Alliance. For more information and to book your place, please email comms.hcvcanceralliance.nhs.net

Sage and Thyme workshop

Cancer Alliance staff are offered a free 3 hour workshop which is being run on behalf of Macmillan Cancer Support.  This course is open to professionals, volunteers, and the wider cancer workforce.

Learning Objectives:

• A memorable structured way for getting into and out of a conversation
• How to empower patients/carers who are worried or distressed
• Communication skills that are evidence-based

20^th July, Sheffield (9.30 – 12.30) or (13.30 – 16.30)

20^th September, Leeds (13.30 – 16.30)

Yorkshire and Humber Leadership Academy – New System Change Consulting Skills Programme announced

The network of Northern Leadership Academies in the North East, North West and Yorkshire and the Humber have collaborated to offer an in-place programme for leaders tasked with transformational change within the system. This programme has been designed to challenge and support leaders to develop their confidence, skills and mindset to work in a ‘change consultant’ capacity when engaging in organisational, cross-organisation and system change transformation and programmes of work.

Senior healthcare professionals working on a transformational change project or leading/supporting a strategic, complex system change are invited to apply. Alternatively, you may be a senior OD/HR or transformation professional working in and/or supporting others with transformational change projects.

Please see further information on our website by copying the link in to your browser and submit your application by 25 July or contact Amanda Reszczysnki.

https://www.hee.nhs.uk/our-work/leadership/yorkshire-humber-leadership-academy/system-change-consulting-skills-programme

Please contact us if you no longer wish to receive this monthly communication, if you have received this bulletin and are not on our distribution list and would like to be, or if there is anything you would like to include in future monthly updates.  Our email is [email protected]

The next monthly stakeholder communication update will be 3^rd August 2018

 

Rafael Cicci

Director – Humber, Coast and Vale Cancer Alliance

 

As part of our communications and stakeholder engagement plans, the Alliance would like to ensure that our stakeholders are kept informed on the latest news and developments. From June we have moved from a weekly communication bulletin to monthly. We will continue to send monthly updates to those involved in delivering the best possible care in cancer services across the HCV Alliance.

The Cancer Alliance System Board met during May and the HCV CA prioritisation report for 2018/19 was presented. This report detailed the areas of prioritisation of funding from the National Cancer Transformation Funding.

The National Cancer Performance and Delivery Group, chaired by NHSE and NHSI, confirmed that there will be a reduction of funding to Cancer Alliance who have not delivered the 85% standard for 62 day pathways. The impact of this decision,, equates to a reduction of 25% in funding for Q1 and Q2 2018/19. As a result of this we have been asked to undergo a rapid prioritisation exercise to align the planned work programme against the revised budget based on an assumption that only 75% of the originally agreed funding will be received during 2018/19.

Awareness and Early Diagnosis (A&ED)

Following a recent recruitment process an A&ED programme manager has been appointed and will commence in post June 2018.

National Faecal Immunochemical Test (FIT)

Programme NHSE are now undertaking the procurement process for a national roll-out of the FIT programme which is planned to commence Autumn 2018.

Lung Health Check

The specification for the Lung Health Check is being developed based on the Manchester programme. Once the specification is agreed, procurement will begin and companies will present their tenders. The Service is planned to commence midOctober following the 2Don’t be the 1” Tobacco campaign during September.

Gateway C

Gateway C is an on-line learning tool to support primary care clinicians in the diagnosis and management of patients. A presentation to primary care clinicians to understand and review Gateway C implementation options and impact will be made on 11th July .

Cancer Champion Programme

The cancer champion project has been launched in Humber, Coast and Vale.

Two Volunteer Co-ordinators for the Cancer Champion programme are now in post and have undergone training to deliver future Cancer Champion training from June 2018.

Cancer champions are drawn from local people who use their experience, knowledge and passion to support friends, family and colleagues to seek help early if they suspect they have symptoms of developing cancer.

Bowel Screening and qFIT: (low risk symptomatic patients)

qFIT modelling training took place in May. A draft outline local business case is in progress and will be presented to the Awareness and Early Diagnosis Board in June.

Diagnostics:

Demand and Capacity – Radiology

A key theme to emerge from the demand and capacity work included the need for collaborative approaches to workforce planning and future locations/procurement of kit.

Please hold the date in your diaries for the demand and capacity workshop being held on 20th June in Goole. Key stakeholders have been identified and invited. If you haven’t received an invitation but feel you should be there, please get in touch with us at [email protected]. The agenda will be sent to attendees beginning of June.

The Alliance has worked in partnership with North West London Cancer Alliance to deliver a market engagement event ahead of the procurement. From the market engagement exercise it is planned that five suppliers will be identified to progress 1:1s with. Emerging questions relate to the detail of how proposed solutions work, costing and whether the solution has previously worked in an NHS setting. A national professional advisory panel with HCV representation is supporting the procurement and has started to bring together the detail that will support development of a specification. Procurement is expected to be complete end of June/early July with a view to award a contract December 2018/January2019.

Pathology

The procurement process will commence September with the approach to standardisation being replicated from the radiology procurement for pathology.

Treatments and Pathways:

In response to NHS Planning Guidance to establish rapid access diagnostic and assessment pathways in lung, colorectal and prostate cancers, funding has been secured to establish tumour site specific task and finish groups for a period of one year.

Agreement on clinical leadership of the Lung, and Prostate Tumour Site Specific Groups

York Heath Economics Consortium has been commissioned to undertake a Health Economic Evaluation of the community CT service provided by HEYT for East Riding and York.

Clinical Leadership has been agreed for the implementation of the rapid diagnosis pathways for Lung, Colorectal and Prostate cancer.

Our three acute trusts have now received confirmation that funding has been identified and agreed for the recruitment of Inter Provider Transfer (IPT) care pathway co-ordinators in our three acute trusts. These are expected to be recruited and in place June 2018.

Living with and Beyond Cancer (LWAB): The Cancer Alliance has recruited a new programme manager, Alison Cockerill for the Living With and Beyond Cancer (LWAB) work stream. Alison will commence late June 2018. A project manager to support the LWAB programme is currently being recruited to with interviews scheduled in June. Both posts have been funded by Macmillan.

Cancer Care Review

The finalised Cancer Care Review (CCR) toolkits have now been distributed to GP practices for use by GP/Practice Nurse. The CCR toolkit had been produced for practices to use to improve the quality and consistency of CCRs. A hard copy and electronic version were received by each GP practice.

Data/Information:

The Cancer Alliance still does not have access to the new Cancer Waiting Times database but it will continue to use the official NHSE cancer statistics for the production of its Provider Cancer Waiting Times Dashboard. In the meantime, NHS England will continue to work with NHS Digital on a solution for Cancer Alliances to directly access the new Cancer Waiting Times database and extract record level, pseudonymised data. A copy of the HCV cancer alliance dashboard is available by contacting us [email protected]

Communications and Engagement:

A HCV Cancer Alliance Communications and Engagement strategy will be developed over the next three months working with key stakeholders across the Alliance footprint. The strategy and supporting delivery plan will set out how we will engage and communicate effectively with our patients, public, staff and stakeholders. For further information please get in touch at [email protected]

Other updates/events:

Be Clear on Cancer – Blood in Pee campaign

The Public Health England blood in pee campaign launches on 19th July and runs over the summer, highlighting signs and symptoms of bladder and kidney cancer, targeting people aged over 50. PHE are looking for local case studies – ideally people aged 50 to 70 who have recognised symptoms and received treatment. If you have any case study suggestions, in the first instance, please contact [email protected] for further information.

Yorkshire Cancer Patient Forum AGM – 29th

The Yorkshire Cancer Patient Forum will be holding their Annual General Meeting on Friday 29 June from 10.30 – 12.30pm at St George’s Conference Centre, Leeds. For further information click here: www.yorkshirecancerpatientforum.co.uk/newsletter-summer-2018/

Macmillan currently has a number of courses that are free to colleagues across the Cancer Alliance to attend. These include:

Understanding Cancer and its Treatments

5th June 9am – 4.30pm – Leeds

Designed to offer a clear and fundamental understanding of the nature of cancer, this course explores cancer prevention, early detection, investigation, staging and treatment options.

Loss and Bereavement – 3rd July 2018, 9am – 5pm – York

Open to people who are interested in or are currently involved in supporting people affected by cancer through loss and bereavement

Please contact us if you no longer wish to receive this monthly communication, if you have received this bulletin and are not on our distribution list and would like to be or if there is anything you would like to see in this update. Our email is [email protected]

Royal Castle Lung Cancer Information Day – Hull
The next Information day takes place on Wednesday 11th July from 09.45 until 16.00 at the Royal Hotel, 170 Ferensway, Hull, HU1 3UF. For further information please contact Elizabeth Weir – [email protected].

The next monthly stakeholder communication update will be on:

7th July 2018

3rd August 2018

Rafael Cicci

Director

Humber Coast and Vale Cancer Alliance Programme

As part of the Programme Communications and Stakeholder Engagement Strategy the programme team is keen on keeping the stakeholders in the system well informed on the latest developments. We will do this by sending brief updates systematically to all those involved in delivering the best possible care in cancer services within the Alliance footprint.

The programme this week has:

• Discussed and agreed clinical leadership for Tumour Sites Specific Groups (TSSG) for Lung, Prostate and Colorectal with lead clinicians from 3 secondary care providers in HCV. Terms of reference for the groups will drafted
• Discussed with NHSI the importance of setting up plans and dates for delivery of the three pathways as they are a key deliverable for this financial year. Also discussed with NHSI the linkage between delivery of the three pathways and HCV Cancer Alliance funding as the pathways are considered a key enabler for sustainable delivery of 62 day target in the footprint.
• Drafted the HCV approach to stakeholder engagement and communications to be discussed at the next Programme Executive and presented to the System Board
• Successfully recruited Alison Cockerill as our new programme manager for the Living With and Beyond (LWAB) work stream
• The national Cancer Breach allocation system will come into force on 1st July 2018. If you would like to know how it will affect performance on 62 day standard in your trust you can consult the guidance in the following link: o National Cancer Breach Allocation Guidance
• Continued the recruitment of a GP primary care lead. Please cascade if you know of a GP within the system that could potentially be interested. Below is the link to the ad
  https://www.jobs.nhs.uk/xi/vacancy/6870e2eb9500df8917b09353d8e6376f/?vac_ref=915038418
• Agreed with the HCV Cancer Alliance Communications and stakeholder engagement team that these Friday Summary Communications will in the near future be replaced by a monthly newsletter
• Macmillan Cancer Support will be publishing the details of its Census on cancer, palliative and chemotherapy speciality nurses and support workers in England next Monday (30th April).The national picture will be available from Monday, here: https://www.macmillan.org.uk/about-us/what-we-do/evidence/researchpublications
• Next stakeholder updates will be on:
  • Friday 04 May 2018
  • Friday 11 May 2018

Rafael Cicci

Director – HCV Cancer Alliance Programme

As part of the Programme Communications and Stakeholder Engagement Strategy the programme team is keen on keeping the stakeholders in the system well informed on the latest developments. We will do this by sending brief updates systematically to all those involved in delivering the best possible care in cancer services within the Alliance footprint.

The programme this week has:

• Discussed with NHSE/I the additional information needed to agree the HCV Cancer Alliance Individual Funding Agreement 2018/19 by 30 April 2018
• Welcomed Rita Trewartha to the programme team Rita will enhance the delivery capacity of the HCV Cancer Alliance. Rita will lead the Awareness and Early Diagnosis Work stream. In particular, on the production of the HCV FIT Roll Out Business Case, Lung Health Check Programme, Cancer Champions and Primary Care Education
• Agreed at the Awareness and Early Diagnosis Delivery Board to lunch in September 2018 the anti-tobacco campaign in HCV. The initiative is funded by the HCV Cancer Alliance and Hull Council (the ad is impactful and was successfully run in Manchester). If you want to see the ad please click on the link below.
  http://www.dontbethe1.tv/
• The national Cancer Breach allocation system will come into force on 1st July 2018. If you would like to know how it will affect performance on 62 day standard in your trust you can consult the guidance in the following link:
  • National Cancer Breach Allocation Guidance
• Initiated the recruitment of a GP primary care lead. Please cascade if you know of a GP within the system that could potentially be interested. Below is the link to the ad
  https://www.jobs.nhs.uk/xi/vacancy/6870e2eb9500df8917b09353d8e6376f/?vac_ref=915038418
• Next stakeholder updates will be on:  Friday 27 April 2018  Friday 04 May 2018

Rafael Cicci

Director – HCV Cancer Alliance Programme

As part of the Programme Communications and Stakeholder Engagement Strategy the programme team is keen on keeping the stakeholders in the system well informed on the latest developments. We will do this by sending brief updates systematically to all those involved in delivering the best possible care in cancer services within the Alliance footprint.

The programme this week has:

• Agreed to be an active partner with North West London (NWL) in the market engagement process for a networked radiology solution. This initial engagement will take place in early May.
• Progressed the capacity and demand work stream (radiology, pathology) and is hoping to have the majority of data in the model by end of April
• Programmed a further stakeholder work shop on 20 June to start to identify priorities and actions in relation to the above mentioned work stream
• Agreed consultancy support to develop the FIT Business Case for Humber Coast and Vale to be approved by the appropriate Delivery Board and Alliance System Board.
• Agreed training from consultancy for next week on the workings of the FIT Business Case mathematical model
• Had its quarterly performance assurance meeting with NHSE North Region and NHSI. Due to HCVs performance to date on the 62 day target we have been identified as likely to benefit from the National Support Fund. On Tuesday and Thursday next week the HCV Cancer Alliance have scheduled conference calls with NHSI, NHSE Regional and National teams to agree where additional support is required, initially to support recovery of the 62 day standard in Q1 & 2 in 18/19. Any further funding agreed will be incorporated into the HCV Cancer Alliance final funding agreement. This final funding agreement is scheduled to be signed off by 30 April 2018.
• The national Cancer Breach allocation system will come into force on 1st July 2018. If you would like to know how it will affect performance on 62 day standard in your trust you can consult the guidance in the following link:
  • National Cancer Breach Allocation Guidance
• Initiated the recruitment of a GP primary care lead. Please cascade if you know of a GP within the system that could potentially be interested. Below is the link to the ad

https://www.jobs.nhs.uk/xi/vacancy/6870e2eb9500df8917b09353d8e6376f/?vac_ref=915038418

• Next stakeholder updates will be on:
  • Friday 20 April 2018
  • Friday 27 April 2018

Rafael Cicci

Director – HCV Cancer Alliance Programme

As part of the Programme Communications and Stakeholder Engagement Strategy the programme team is keen on keeping the stakeholders in the system well informed on the latest developments. We will do this by sending brief updates systematically to all those involved in delivering the best possible care in cancer services within the Alliance footprint.

The programme this week has:

• Discussed FIT roll out next steps. An outline business case has been developed and reviewed by the multidisciplinary steering and clinical expert group. The outline business case will be revised to reflect discussions and comments made at the last steering group in February.
• Each Cancer Alliance will take the revised version of the plan forward through their Early Diagnosis and Cancer Alliance Boards.
• The HCV Cancer Alliance Awareness & Early Diagnosis Delivery Board has discussed it and agreed it on its last meeting.
• Each Cancer Alliance has a Project Manager for implementation:
  • Denise Friend – South Yorkshire, Bassetlaw and North Derbyshire Cancer Alliance [email protected]
  • Jane Wild – West Yorkshire and Humber Cancer Alliance [email protected]
  • Trish Rawsley – Humber Coats and Vale Cancer Alliance [email protected]
• Each locality will be responsible for contacting manufacturers directly if and when required. The three Cancer Alliances will continue to work together to share learning during implementation and are considering working together to produce standardised patient information.
• Training on the use of model is scheduled for March 2018 for relevant staff. This will be recorded as a WebEx and circulated for those who are unable to attend. Cancer Alliances can negotiate further sessions separately with Nick Hall from Transforming Care through their Project Managers.
• If you have any questions about training please contact the project manager for your alliance.
• Evaluation: Robust monitoring is required as part of the implementation strategy for FIT. A sub group, of the steering group, is to be established to work on this piece of work.
• We’d love to hear from you about how we can communicate with you more effectively – please email your ideas, along with your name and the area you work in to Patricia Rawnsley [email protected]
• Thanks go to all members of the multidisciplinary and clinical steering group for their insight and input, enabling the project to get to the stage it is at. The steering group will meet again within the next 12 months to contribute to national evaluation.
• The Living with and Beyond Cancer work stream at Humber Coast and Vale Cancer Alliance have been working on a Cancer Care Review (CCR) resource pack. These are currently with the printers and will be sent out to each practice in the HCV footprint in the next few weeks.
• The CCR is part of the Macmillan Recovery Package (RP). The implementation of the RP is part of the National Cancer Taskforce recommendations for World Class Cancer outcomes.
• We know from QOF data that CCRs are being undertaken in primary care for the majority of cancer patients. For the QOF payment a CCR needs to be undertaken within 6 months of diagnosis. What we cannot be assured about it is the quality of these reviews. Macmillan have devised a template for carrying out the CCR in primary care however it is not available on SystmOne – a copy of the template is in the pack so practices can ensure their template is at least as good as the Macmillan version.
• The pack will be available as hard copy for each of the practices across HCV.
• This is how the front page pack will look like:

• The national Cancer Breach allocation system will come into force on 1st July 2018. If you would like to know how it will affect performance on 62 day standard in your trust you can consult the guidance in the following link:
  • National Cancer Breach Allocation Guidance
• Cancer Alliance Director updated constituent CCGs at the Joint Commissioning Committee on Alliance Commissioning Intentions 2018/19
• Next stakeholder updates will be on:
  • Friday 13 April 2018
  • Friday 20 April 2018

Rafael Cicci

Director – HCV Cancer Alliance Programme

As part of the Programme Communications and Stakeholder Engagement Strategy the programme team is keen on keeping the stakeholders in the system well informed on the latest developments. We will do this by sending brief updates systematically to all those involved in delivering the best possible care in cancer services within the Alliance footprint.

The programme this week has:

• Held the Diagnostics capacity and demand workshop with stakeholders
• Prepared the Dashboard Report with validated final numbers for December 2017
• Agreed at the Programme Executive the HCV Cancer Alliance Commissioning Intentions 2018/19 paper to be discussed at the next System Board on 12 March 2018
• Received approval from NHS England of the Transformation Funds bid for Living with and Beyond Cancer (LWAB) for the financial year 2018/19
• Our submission bid for LWAB was for £850k. The submission was approved at 75% for Quarters 1 and 2 of next financial year. So this means: we have secured £531250 for LWAB for the whole year. (Q1 and 2 at 75% plus Q3 and 4 at 50%, assuming worst case scenario for Q3 and Q4 of financial year 2018/19)
• Received confirmation from NHSE meeting of its Cancer PDG Group this week that there will be a link between 62 day performance and release of TF monies to cancer alliances.
• The above mentioned group assigned 75% of the TF monies for HCV Cancer Alliance for Q1 and Q2 of financial year 2018/19. This is so because the performance of the HCV Cancer Alliance on the 62 day standard was between 80% and 85% (actual 80.02%) for Q3 of financial year 2017/18.
• Q3 and Q4 of financial year 2018/19 allocations will be decided according to HCV performance on 62 day standard on the months of May, June and July 2018. Minimum allocation is 50%.
• Agreed a briefing to constituent CCGs. HCV Cancer Alliance Programme Director scheduled to brief the Joint Commissioning Committee that will meet on 5th March 2018 in Hull.
• Next stakeholder updates will be on:
  • Friday 09 March 2018
  • Friday 13 April 2018

Rafael Cicci

Director – HCV Cancer Alliance Programme

As part of the Programme Communications and Stakeholder Engagement Strategy the programme team is keen on keeping the stakeholders in the system well informed on the latest developments. We will do this by sending brief updates systematically to all those involved in delivering the best possible care in cancer services within the Alliance footprint.

The programme this week has:

Agreed and approved at the Awareness & Early Diagnosis Programme Delivery Board to support Business Case for the roll out of FIT in Yorkshire and the Humber (please see business case enclosed)

• The programme Executive agreed to support the launch of a tobacco campaign in media in July 2018. The campaign will be supported also by Hull Council
• Launched the ads for the recruitment of 4 Project Managers Band 7 and 1 Project Manager Band 8a. People already working in the health system interested in secondment opportunities please contact the Programme Director Rafael Cicci at [email protected]
• Agreed with NHSE/I the list of key 15 stakeholders in the health system to the cancer improvement event on 13/03/18 in 2 Brewery Wharf, Kendell Street, Leeds LS10 1JR organised by NHS England North Region. The event is aimed at Cancer Alliances and GM Cancer Vanguards
• The aim of the event is to bring a wide range of stakeholders together to build energy for change and co-design an improvement programme that will create a platform to facilitate delivery of mutually identified priorities to bring about the following objectives:
  • A combination of strong stakeholder engagement (formal & informal) to enable change o Renewed energy for change
  • Co-production of an outline plan that will be the framework to enable an improvement movement to happen
  • Agreement of identified short and long term outputs and mutual priorities
• Received confirmation from NHS England in relation to the current position on the use of FIT testing in the diagnosis of colorectal cancer in symptomatic patients
• This update is ready to view/download on the Cancer Alliances workspace: https://future.nhs.uk/connect.ti/canc/viewdocument?DOCID=33907749&done=DOCCreated1&FID=10820016 (National guidance and documentation > Clinical advice for Alliances) Please cascade to your clinical colleagues as required. If you have any questions about this progress update please contact [email protected]
• If you have questions about accessing the Alliances workspace on Kahootz please contact Hannah Fox, Pogramme Manager – Cancer Alliances (Strategy & Engagement) National Cancer Programme Operations & Information NHS England Skipton House | 80 London Road | London | SE1 8UG Mobile 07702 408 502
• Received a communication from NHS England North around the proposed approach to the release of cancer transformation funding in 18/19
• The suggested approach is as follows:
  • Decision to release funding to be based on actual cancer 62 day performance (average of last 3 months) – we anticipate Q1 would be based on October to December average performance
  • Proportion of transformation funding to be held back if performance is below 85% during the 3 months
  • Personalised 2018/19 implementation plans to be developed for each Alliance to include:
    • Any required actions on 62 day performance
    • Priority focus on 2018/19 planning guidance deliverables
• Once an Alliance meets the standard, the proportion of funding that was previously held back will be released  Same principles to be applied to all Alliances
• It is expected that funding would be allocated on a tiered approach; those achieving the 62 day standard will receive 100% allocation, those achieving 80-85% standard would get 75% and those achieving less than 80% would only get 50% of their transformation funding. The proposed approach is expected to be signed off at PDG on 28th February.
• We are aware that this may have serious implications for delivery of transformation programmes, particularly for those Alliances who have already committed to funding transformation staff until March 2019 and
  have raised these risks, among others with the National team. We are keen to understand the full extent of the potential impact that this approach would have on each Alliance. We will try to organise a call with the National Cancer Programme Director so that we can allow you to discuss any potential risks ahead of PDG.
• The HCV Cancer Alliance responded the following:If the proposed approach for funding approval is taken there are serious risk/implications for the work the HCV Cancer Alliance is pursuing:1) Early Diagnosis:

The first part of the programme spend for Early Diagnosis hinged on getting staff in place to move the programmes forward and do some of the back ground work. For example, B7 project support\Volunteer coordinators\setting up the Cancer champion programme and agreeing the contract with NE Lincs Care Plus Group as well as getting Clinical leads in place, social marketing for the lung programme and some analytical and evaluation support. Most of these roles are on fixed term contracts. If the funding going forward is held back due to 62 day performance the biggest risks to the work stream are:

• Funding for the staff already appointed to March 2019
• Ability to establish and run the Lung Health Check programme. Any uncertainty and delays in preparing the tender and subsequent procurement of the van will significantly impact on the ability to deliver this programme before March 2019. Timescales for this are already extremely tight. Linked to this is the recent agreement by the HCV lung teams to look at the RAPID diagnostic work that Manchester have shared with a view to replicating this across HCV. This will support achievement of the 62 days standard and is the start of implementation of the optimal lung pathway. We do not want to lose the engagement and enthusiasm of the clinical teams which could happen if there is no support for this.
• The outline business case for the roll out of FIT has just been done and people are being trained on the modelling. It will be difficult and take longer to role this out across HCV if we do not have the funds allocated from the transformation fund to do this across the whole HCV area (Hull already have funding to extend the pilot). From our discussions on Friday at the Early Diagnosis Delivery Board this has the potential to make a huge difference to patients\save money by reducing the number of people requiring colonoscopy/CT, etc. and speed up the pathway again to support delivery of the 62 day standard.
• If we go ahead and appoint the 3 Volunteer Co-ordinators then the programme will continue but potentially not at the pace and scale as originally planned.2) Diagnostics Consolidation:
• The procurement of an imaging system to support a networked model of pathology will be stopped (the procurement process can only take place if we have all the funding, partial funding will halt the programme altogether)
• The procurement of a work administrator system to support a networked model of radiology will be stopped (the procurement process can only take place if we have all the funding, partial funding will halt the programme altogether)
• These programmes support delivery of 62 day standard by enhancing diagnostics capacity.3) Treatments and Pathways:
• The clinical engagement process for tumour sites groups for Lung, prostate and colorectal has already started. The most advanced one is the lung group which has been now operating for some time (this process also support delivery of 62 day target).
• There is a risk here that the work will be significantly reduced/progress delayed as the trust need resources to back fill consultant time.
• Again this supports delivery of the 62 day standard within the HCV footprint

There are also risks for ERY CCG as it is hosting the HCV Cancer Alliance. Probably the best way to minimise the risk from the CCG perspective is to halt everything which is a medium to long term commitment until we have the funds secured.

As a general comment I would say we need clarity about what we will be expected to deliver and what we will no longer be expected to be delivered as the proposed approach makes it very difficult to plan and execute medium to long term transformational change. The TF were approved in our bids for 17/18 and 18/19. It is really difficult to execute if we are subject to the funds being “unapproved” every three months.

If 62 days if the biggest priority may be we need to agree that Cancer Alliances devote all their resources and capabilities for the time being to support NHSI in helping trusts deliver on 62 day standard if this is the ask from the National team.

Regards,

Rafael Cicci

Director – HCV Cancer Alliance Programme

[email protected]

07564157793

• Next stakeholder updates will be on:
  • Friday 02 March 2018
  • Friday 09 March 2018

Rafael Cicci

Director – HCV Cancer Alliance Programme

As part of the Programme Communications and Stakeholder Engagement Strategy the programme team is keen on keeping the stakeholders in the system well informed on the latest developments. We will do this by sending brief updates systematically to all those involved in delivering the best possible care in cancer services within the Alliance footprint.

The programme this week has:

• Agreed at the Awareness & Early Diagnosis Programme Delivery Board to support the launch of a tobacco campaign in media in July 2018. The Programme Executive will discuss it on 2nd March and System Board on 12 March
• Produced in conjunction with West and South Yorkshire Cancer Alliances the Business Case for the roll out of FIT in Yorkshire and the Humber (please see business case enclosed)
• Agreed to include in this stakeholder update the contact emails of the programme sponsors and programme managers of the 4 main work streams of the HCV Cancer Alliance programme to maximise the opportunity of people to be informed, engaged and linked up with the main activities of the Alliance. These are:
  • Awareness & Early Diagnosis Tim Allison [email protected] Patricia Rawnsley [email protected]
  • Diagnostics Consolidation Wendy Scott [email protected] Mikki Golodniski [email protected]
  • Treatment & Pathways Elen Ryabov [email protected] John Hancock [email protected]
  • Living with and Beyond Jacqueline Myers [email protected] Lesley Emerson [email protected]

• Approved the recruitment of 4 Project Managers Band 7 and 1 Project Manager Band 8a. People already working in the health system interested in secondment opportunities please contact the Programme Director Rafael Cicci at [email protected]
• Invited key stakeholders in the health system to the cancer improvement event on 13/03/18 in 2 Brewery Wharf, Kendell Street, Leeds LS10 1JR organised by NHS England North Region. The event is aimed at Cancer Alliances and GM Cancer Vanguards
• The aim of the event is to bring a wide range of stakeholders together to build energy for change and co-design an improvement programme that will create a platform to facilitate delivery of mutually identified priorities to bring about the following objectives:
  • A combination of strong stakeholder engagement (formal & informal) to enable change
  • Renewed energy for change
  • Co-production of an outline plan that will be the framework to enable an improvement movement to happen
  • Agreement of identified short and long term outputs and mutual priorities

The HCV Cancer Alliance has 15 places allocated. If you want to participate please email PENNINGTON, Charlotte Pennington ([email protected]) before Friday 23rd February 2018

• Received confirmation from NHS England in relation to the current position on the use of FIT testing in the diagnosis of colorectal cancer in symptomatic patients
• This update is ready to view/download on the Cancer Alliances workspace: https://future.nhs.uk/connect.ti/canc/viewdocument?DOCID=33907749&done =DOCCreated1&FID=10820016 (National guidance and documentation > Clinical advice for Alliances) Please cascade to your clinical colleagues as required. If you have any questions about this progress update please contact [email protected]
• If you have questions about accessing the Alliances workspace on Kahootz please contact Hannah Fox, Pogramme Manager – Cancer Alliances (Strategy & Engagement) National Cancer Programme Operations & Information NHS England Skipton House | 80 London Road | London | SE1 8UG Mobile 07702 408 502
• Next stakeholder updates will be on:
  • Friday 23 February 2018
  • Friday 02 March 2018

Rafael Cicci

Director – HCV Cancer Alliance Programme